Before I logged onto this site I didnt realise how many people there were relatively close to me with PSP, and I am sure there must be others who have not found the site yet. I am in touch with the daughter of a patient and i am also in regular contact with her mum and we try to meet up every couple of months.
With the support of the PSPA I am trying to get a support group up and running in the Brentwood area. If there is anyone out there in the East London/Essex area who would like more details and would like to come along please do get in touch with the PSPA for more details. If the support group is a success, who knows, we may set up another group in another area.
It s nice to be able to give support to patients and their families, as I have been there and know exactly what they are going through.