PSP Association
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My dad -Tom

My brave courageous dad Tom lost his battle with this awful illness just hours into the New Year. It would have been his 47th wedding anniversary the next day.

He had been admitted to hospital with pnuemonia on 15th December but responded well and came home on Christmas Eve. Sadly he was rushed back in on Friday with breathing difficulties and died on Sunday morning.Mum never left his side while he was in hospital. We are all still in shock.

We have met some great people and have had loads of good advice through this forum and the Brentwood Support Group, particularly Jenni, Liz and Ray.

My auntie, Ronc, has also been a great support to us and to the PSPA, raising money and setting up a support group,and the whole family will continue to campaign to raise awareness into this terrible illness.

Claire, Beth and Dominic xx

12 Replies

Please accept my condolences at this very sad time. Love to you all.

SuzieQ xx


dear claire,

im so sorry to hear the sad news of your loss of your dad

please give my sincer condolences to all the family and if

there is anything you need just ask,

best wishes

ray xx


thoughts are with you all x


Dear Claire,

So sorry to hear of your loss. I'm so glad your Mum was able to be with him.

Love to all of you and BIG HUGS!!




Dear Claire

So sorry to hear you lost your dad. My thoughts are with you at this time. My love to you, your mum and your family.

Lesley x


hi so sorry to hear your sad news,i know exactely how you feel we lost my mum 8th Nov so i understand but i keep telling myself and so does the rest of our family that she's at peace and not suffering anymore. My thoughts are with you all. Lorrax


Hi Beth, Claire and Dom

Just read your post - what can I say!!! It has been my pleasure to give you all love and support and I will continue to do so for as long as you may need it. Please feel free to contact me, i will send you an e mail with my mobile and land line numbers, please dont be afraid to call me. I am in tears as I am writing this, you are a lovely family and I feel your pain.

I will ask for healing for you all and prayers for progression for Tom - I will put you all in the healing book when I go to church on Sunday.

If there is anything I can do to support you over the coming weeks and months pease contact me.

God Bless you all.

Love and hugs Jenni XXXXXX


Dear Claire,

I am so sorry to hear of your loss. My thoughts and prayers are with you and your family.



Thanks to everyone for their kind words, thoughts and prayers - it means alot to the family at this time, and Jenni I will be in touch

Love Claire


Claire - just a thought, if you and Beth would like to receive some healing, I cn either come to visit at home or you are more than welcome to come along on a Sunday at Ilford Spiritualist Church, High Road, Ilforfd [almost opposite Ilford Re-cycling centre] Sunday between 5 pm and 6pm, best to get there early than late in case we are busy or Tuesday evening between 7.30 and 9, no charge, just a free will donation. I am there on Sunday for healing, you are not expected to stay fror the evening service on Sunday. Tea and coffee and biscuits are available at the huge cost of 10p!!!!!!!!!

Love Jenni XXXXXXXX [call me for more details if you want]


dear claire

so sorry avotu yoru loss - just read yoru post

love jill

xxx an d Hugs


Oh Claire, I have only just read about your Dad. I am so very sorry to hear your news. My darling Mum lost her long brave battle with PSP on 29 December and we are beyond devastated. I think we met at the last Brentwood PSP meeting. We are going to be collecting donations in Mum's memory for the PSP Association at her funeral on 16 January 2012.

My very deepest sympathy Claire to you and your family. PSP is quite simply the most appallingly cruel disease.

Fondest love from

Catherine xxxx


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