I discovered this week that a lady I have known for more than 60 years has died following 8 years suffereing with CBD. We were pals as kids and when we married and had our own familes, Pat very kindly looked after my twins during the school holidays while I was working. We have never lost touch completely and have always met up at funerals of friends, relatives etc known to both of us. (Sounds a bit morbid but nevertheless, we would always carry on from where we had left off last time). We have exchanged Christmas Cards for years now, so imagine my shock when her hubby phoned me to tell me that Pat had passed away on Monday. During our conversation I was able to ask what had happened and he told me that following a problem with her PEG feeding tube she had developed pneumonia. His next comment was that he didn't expect I knew what a PEG was! I explained that I was aware of it as my hubby suffers with PSP and at some time in the future we are facing the choice of PEG or No PEG. He was unaware of PSP and it was not appropriate at that time to ask him what condition Pat has been suffering from.
However, I spoke to him again today and he confirmed that Pat has been suffering CBD for the past 8 years. I cannot believe the coincidence we both noticed, firstly that someone actually knew what CBD was, and secondly that the PSP Assoc. champions both conditions in its attempts to find a cure.
My friend's husband, Tony, briefly told me of her suffering over these last years and admitted that at least she is now at peace.
God Bless to all CBD and PSP sufferers and my deepest condolences to all family and friends of my friend Pat. R.I.P.