I became very aware of the "ripple effect" that PSP has on the family and friends of those who are suffering from this cruel disease.
Mum is the centre of our ripple, but Dad's life, my brother's, sister's and my life, Mum's sister's life, her dearest friend's life, my husband and my children's lives have all been changed forever.
PSP has taken over to such an extent that every day some part of my day is affected by PSP - even if it's only to log onto the various forums. This was brought home to me by something that happened the other day. We were sitting round the dinner table talking, my son, my husband and I and I said "I noticed something on a website today..." and my husband and son said, IN UNISON, "the PSP forum???" and then "Surprise, surprise!!"
It just takes over!