It has been great to start reading your blogs - a big step for me as i am inclined to keep everything inside and cope on my own.
Mum has psp and yes it is like having your parent stolen from you!
She was diagnosed in November 2008 but looking back it was there awhile before, but other health problems were always blamed for her falls and stiffness.
We moved her closer to the family into a wonderful care home in Feb 2010, as she was living alone over 200 miles away. All the staff have taken a keen interest in learning about psp, but i am really struggling.
I am one of those people that can deal with things when i know what i am facing but Mum's psp is so unpredictable - do you all feel the same or is it me?
Mum, bless her, keeps hoping she will get better, though i know she knows she wont. When we can understand her it is great but she becomes very frustrated when we cannot understand her. She has a Litewriter but sometimes her eyesight lets her down and we have to decypher what she is trying to say.
What a cruel disease psp is - an active brain locked in a slowly deteriorating body!
I try so hard to help when i visit her and keep jolly and positive but it is so hard at times.
Losing my Dad in 2008 was hard but this is so sad. I love Mum so much
Thank you all for your blogs, although some make me cry i find them so helpful and it is good to know we are not alone. It's not something that comes easy to me to write on a forum such as this but i know i shall keep reading.
Best wishes to all families, carers and sufferers of this "thing" called psp!