My lovely dad, Tom, passed away very peacefully on Friday 13th October 2023. I will share more of his story at some point to explain his journey, as I know I found reading similar posts helped me prepare for what was to come, and it enabled me to pass on incredibly useful information and advice to his nursing team.
I just really want to thank everyone who posts here, and to the staff at the PSP Association for their support. We had very few medical staff who had knowledge or experience of PSP, so it’s been a learning process for everyone, and I hope to continue promoting more awareness and knowledge of PSP to help others.
I honestly can’t thank you all enough. This is a special wee community we have here 💜
Karen x
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KK123456
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sending my love to you and your family I know this community has been a god send to me and that a similar fate is not far away for my mum I pray for a peaceful end for her
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