My husband is in hospital since 4 weeks and I am desperate to get him discharged to a suitable care home appropriate to his needs. Up to my neck with social services and the Parkinson's Nurse and going to all consultants plus GP involved with my husband since July 2015 when he was formally diagnosed with MSA before a revised diagnosis of PSP in January of this year. I feel that the assessment made by the hospital social services case manager and the Parkinson's Nurse is incorrect as each care home that has assessed my husband says they cannot meet his needs. Meanwhile my husband is deteriorating on a daily basis on a ward surrounded with severely disturbed and critically ill people. Nobody understands the illness and I have to suggest that blood and urine tests are needed as I think he has an infection due to his quick decline in cognition, confusion, hallucinations and affected walking which he can now barely do unaided. I have requested a meeting with the social services care manager and Parkinson's Nurse to get them to change their assessment and to try and get the funding increased. Has anyone else been in this situation and if so did they ever resolve and get the care needed? Does anyone live in the Kent area and have knowledge of care homes who can provide the needs for an MSA sufferer? Are there any MSA sufferers in Kent at all? Many thanks to anyone who can help, most grateful.
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