Watching TV

[Granny29335]

Can someone explain why my husband is watching only one TV show for hours? Is this normal for PSP? He didn't do this before. Thank you.

[Millidog]

I dont know sorry but we have the same here. My husband watches Antique Road Trip continuously and when changing to other channels will either change back or get himself confused using the remote control and lose live tv channels. I wonder if apathy, loss of hand dexterity, eye gaze problems and cognition play a large part in this but woulkd also love to hear any other experiences and advice. Take care

[Granny29335 in reply to Millidog]

I don't know. He watches Blacklist and started with season 1, episode 1. He stays awake with it. Anything else, he just falls asleep. Thank you so much for responding.

[Rose1sunflower]

Similar thing here. He is sometimes watching something that I know he doesn’t like, I ask him why is he watching it and he replies he doesn’t know. I think it could be due to apathy and also he has problems occasionally with the remote, can get confused with what he has to do next. Uses the voice control on it but this is getting harder to use successfully.

We are hoping to see somebody from technical communications team attached to Speech Therapy but there is a long waiting list.

[Granny29335 in reply to Rose1sunflower]

It's all confusing to me. Trying to figure out what he's really thinking or experiencing now. I think he is hiding things from me at this point. He still has enough within himself to not want to worry me. I dread when he loses that desire. Thank you for responding.

[Dance1955]

hi Granny29335 is he really watching it or is he just comfortable with the background and the familiarity of it

unfortunately we just have to let them be with whatever they want to do nothing is normal with PSP and we just have to work with it

My husband couldn’t speak for a long time so I didn’t know what he was thinking no normal just heartache

You are doing a great job just be there for him

Sorry to say it doesn’t matter about normal any more

Hugs to you x

[Granny29335 in reply to Dance1955]

Thank you for responding. I am struggling just watching him lose himself. I see the loss of normality. It breaks my heart.

[Rose1sunflower in reply to Granny29335]

Yes, I totally agree! It is horrible seeing them, as you say lose themselves. We all seem to lose our identity, the one with the condition and the carer, I’d never considered this aspect of it. The apathy really doesn’t help, hence why he ends up sitting in front of the tv.

[Dance1955]

yes I know nothing you can do

Mine broke watching too and is more broken now since he’s gone

Try to cherish the time you have together make some nice memories

It’s the worst disease I’ve ever seen and not much support as there is a lot of ignorance out there

Just love him

Hugs my friend x

[Yasou]

This is a common thread. My husband likes Shark Tank. He will watch it for hours and hours, many times it is a re-run. It does not cause stress; it is easy to follow, and he can enjoy it with his eyes closed. My husband is in the advanced stage and chairbound with cognitive decline.

[Ovation1]

yes very normal my husband would only watch ncis everyday for about 6 months