hi everyone, Colin has been put on “end of life” drugs now via a syringe driver, he stopped eating last Wednesday, although he hadnt eaten or had anything to drink much for while, as he is now unable to open his mouth. He has lost so much weight so quickly. Getting him to take his painkillers was a nightmare it would take me hours and a lot of bitten fingers. So after 3 years of being bedbound and 4 years of me being at home with him constantly caring, it is all coming to an end.
He is very peaceful at the moment, I’m already feeling a little lost as I no longer have to try to get him to eat and drink. Not sure what’s to come in the coming days maybe weeks but least I know he’s actually got medication in him so is not in pain.
Love to you all
Helen xxx
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Helen119
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I am so sorry! Much love and prayers. I am dreading the day. And pray daily he doesn’t have to suffer. He already is under so much stress not being able to do all the things he’s use to be able to do. He feels useless. I try to encourage him and tell him it’s not his fault. Prayers to you and your loved one. ♥️
Sending love and blessings to you both as Colin makes his final journey. Not an easy time but at least you know he is comfortable and peaceful. Hugs xxx
thank you for posting this. I hate being a burden to my family. Your wonderful loving spirit comforts me. And thank you for saying that Colin is at peace. Three years is a long time. Bless you
Time to let others do the caring, you just love Colin and hold him tight. They are extremely precious moments and will see you through the dark days ahead.
So much strength and love coming your way during these days. My hubby went on his final journey 5 years ago, very similarly, with a syringe driver to keep him comfortable and calm as he transitioned. I remember those days well, but what stands out the most for me was how peaceful the house became after all those years of constant go, go, go! Friends and family came to say their last goodbyes and there were as many laughs as there were tears. I loved being able to snuggle up to him and just be. It's so incredibly sad to say goodbye, but I really hope that at this time you are both surrounded by love and peace. S
Helen, thanks for sharing this. My husband is still able to eat, and I am dreading the stage where you are now, waiting and watching. I am so glad Colin is not in pain or discomfort. I relate to your feeling of being lost already. Because you are sharing your experience, I am able to anticipate that phase and know how important it is to communicate. My thoughts are with you both.
My heart aches for you. I know we will have to reach this stage at a later point as we go through this horrible disease. Take confort in the love and care you provided as this disease takes a toll on the caregiver too.
Dear Helen119, We have been where you and your beloved Colin are right now. "Comfort care" for him, and any comfort you may find in knowing he is not suffering any pain. I send you love and many hugs, Purrlie
I am so sorry to hear. You have been amazing to devote so many years to looking after him. I fear on this forum we all are (or have been) on the path you are on. I am not looking forward to my turn.....
Thinking of you, so glad you have been able to stay at home together. This was so important for my Mum and it gave me much solace that I was able to do that for her. The last few days were very peaceful and Mum just drifted away, one last hand clasp and .......
Helen, I am so sorry you have reached this stage. My heart goes out to you and Colin. He is lucky to have you at his side. Keep him close and let him know how much he is loved.
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End stage?
Reading 'Last Dance At The Savoy'
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