Very last stage

[Helen119]

hi everyone, Colin has been put on “end of life” drugs now via a syringe driver, he stopped eating last Wednesday, although he hadnt eaten or had anything to drink much for while, as he is now unable to open his mouth. He has lost so much weight so quickly. Getting him to take his painkillers was a nightmare it would take me hours and a lot of bitten fingers. So after 3 years of being bedbound and 4 years of me being at home with him constantly caring, it is all coming to an end.

He is very peaceful at the moment, I’m already feeling a little lost as I no longer have to try to get him to eat and drink. Not sure what’s to come in the coming days maybe weeks but least I know he’s actually got medication in him so is not in pain.

Love to you all

Helen xxx

[AliBee1]

My love and prayers are with you during this time. Big virtual hug. AliBee

[Helen119 in reply to AliBee1]

thank you cxx

[Dolly9to5]

Sending lots of love , you have taken such good care of your husband xxx sending you strength xx

[Helen119 in reply to Dolly9to5]

thank you xxx

[Hidden]

I am so sorry! Much love and prayers. I am dreading the day. And pray daily he doesn’t have to suffer. He already is under so much stress not being able to do all the things he’s use to be able to do. He feels useless. I try to encourage him and tell him it’s not his fault. Prayers to you and your loved one. ♥️

[Helen119 in reply to Hidden]

thank you xx

[Julieandrog]

Hold him tight xx

[Helen119 in reply to Julieandrog]

I will thank you xxx

[daddysgirl1916]

sending loads of love right now, ❤️

[Helen119 in reply to daddysgirl1916]

thank you xxx

[AnneandChris]

Sending love and blessings to you both as Colin makes his final journey. Not an easy time but at least you know he is comfortable and peaceful. Hugs xxx

[Helen119 in reply to AnneandChris]

thank you xxx

[Beckany]

Sending lots of love and hugs to you right now. Xxx

[Helen119 in reply to Beckany]

thank you xxxx

[fishponds]

sending hugs xxx

[Helen119 in reply to fishponds]

thank you xxx

[Cantiga]

thank you for posting this. I hate being a burden to my family. Your wonderful loving spirit comforts me. And thank you for saying that Colin is at peace. Three years is a long time. Bless you

[Helen119 in reply to Cantiga]

thank you xxx

[Suncitywest]

it has been a hard road for you both but at least he is not in pain. Take care of yourself.

[Helen119 in reply to Suncitywest]

thank you xxx

[Heady]

Time to let others do the caring, you just love Colin and hold him tight. They are extremely precious moments and will see you through the dark days ahead.

Sending a very large hug and much love

Lots of love

Anne

[Helen119 in reply to Heady]

thank you Anne xxx

[Upturned]

I feel your pain x

[Helen119 in reply to Upturned]

thank you xxx

[Scottoppy]

Stay strong, all good wishes XXX

[bichonbear1]

Wishing you all the strength in the world. My thoughts are with you x

[Helen119 in reply to bichonbear1]

thank you xxx

[Mpsp]

Love you and may god give you strength

Thank you for sharing with us and giving

me strenght for the future .Love & Hugs.

[Helen119 in reply to Mpsp]

thank you xxx

[Sawa]

So much strength and love coming your way during these days. My hubby went on his final journey 5 years ago, very similarly, with a syringe driver to keep him comfortable and calm as he transitioned. I remember those days well, but what stands out the most for me was how peaceful the house became after all those years of constant go, go, go! Friends and family came to say their last goodbyes and there were as many laughs as there were tears. I loved being able to snuggle up to him and just be. It's so incredibly sad to say goodbye, but I really hope that at this time you are both surrounded by love and peace. S

[Helen119 in reply to Sawa]

thank you xxx

[ncgardener799]

Our hands are holding yours!!! HUGS Pat K

[Helen119 in reply to ncgardener799]

thank you xx

[Sebuly14]

Sending warm hugs to you and Colin during this difficult time!

[Helen119 in reply to Sebuly14]

thank you xx

[Regann]

Helen, thanks for sharing this. My husband is still able to eat, and I am dreading the stage where you are now, waiting and watching. I am so glad Colin is not in pain or discomfort. I relate to your feeling of being lost already. Because you are sharing your experience, I am able to anticipate that phase and know how important it is to communicate. My thoughts are with you both.

[Helen119 in reply to Regann]

thank you xxxx

[audreydrs]

My heart aches for you. I know we will have to reach this stage at a later point as we go through this horrible disease. Take confort in the love and care you provided as this disease takes a toll on the caregiver too.

[Helen119 in reply to audreydrs]

thank you xxx

[Polygon]

Sending prayers and hugs to you. May you have the strength and find peace as you go through this difficult time. Take care.

[Helen119 in reply to Polygon]

thank you xxx

[Purrlie]

Dear Helen119, We have been where you and your beloved Colin are right now. "Comfort care" for him, and any comfort you may find in knowing he is not suffering any pain. I send you love and many hugs, Purrlie

[LuisRodicioRodicio]

A big hug.

Luis

[Richard33]

Helen,

I am so sorry to hear. You have been amazing to devote so many years to looking after him. I fear on this forum we all are (or have been) on the path you are on. I am not looking forward to my turn.....

Sending love and strength.

Richard x

[Helen119]

thank you xxx

[AJK2001]

Thinking of you, so glad you have been able to stay at home together. This was so important for my Mum and it gave me much solace that I was able to do that for her. The last few days were very peaceful and Mum just drifted away, one last hand clasp and .......

[Helen119]

thank you xxx

[easterncedar]

Be very kind to yourself, very gentle. This is so very hard. Sending love.

[Helen119 in reply to easterncedar]

thank you xx

[Dickwin]

Helen, I am so sorry you have reached this stage. My heart goes out to you and Colin. He is lucky to have you at his side. Keep him close and let him know how much he is loved.

[Helen119 in reply to Dickwin]

thank you xxx

[Tippyleaf]

Thinking of you both at this difficult time

Love and hugs Tippy xx

[Helen119]

thank you xx