Very last stage: hi everyone, Colin has been... - PSP Association

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Very last stage

Helen119 profile image
53 Replies

hi everyone, Colin has been put on “end of life” drugs now via a syringe driver, he stopped eating last Wednesday, although he hadnt eaten or had anything to drink much for while, as he is now unable to open his mouth. He has lost so much weight so quickly. Getting him to take his painkillers was a nightmare it would take me hours and a lot of bitten fingers. So after 3 years of being bedbound and 4 years of me being at home with him constantly caring, it is all coming to an end.

He is very peaceful at the moment, I’m already feeling a little lost as I no longer have to try to get him to eat and drink. Not sure what’s to come in the coming days maybe weeks but least I know he’s actually got medication in him so is not in pain.

Love to you all

Helen xxx

53 Replies
AliBee1 profile image
AliBee1

My love and prayers are with you during this time. Big virtual hug. AliBee

Helen119 profile image
Helen119 in reply to AliBee1

thank you cxx

Dolly9to5 profile image
Dolly9to5

Sending lots of love , you have taken such good care of your husband xxx sending you strength xx

Helen119 profile image
Helen119 in reply to Dolly9to5

thank you xxx

I am so sorry! Much love and prayers. I am dreading the day. And pray daily he doesn’t have to suffer. He already is under so much stress not being able to do all the things he’s use to be able to do. He feels useless. I try to encourage him and tell him it’s not his fault. Prayers to you and your loved one. ♥️

Helen119 profile image
Helen119 in reply to

thank you xx

Julieandrog profile image
Julieandrog

Hold him tight xx

Helen119 profile image
Helen119 in reply to Julieandrog

I will thank you xxx

daddysgirl1916 profile image
daddysgirl1916

sending loads of love right now, ❤️

Helen119 profile image
Helen119 in reply to daddysgirl1916

thank you xxx

AnneandChris profile image
AnneandChris

Sending love and blessings to you both as Colin makes his final journey. Not an easy time but at least you know he is comfortable and peaceful. Hugs xxx

Helen119 profile image
Helen119 in reply to AnneandChris

thank you xxx

Beckany profile image
Beckany

Sending lots of love and hugs to you right now. Xxx

Helen119 profile image
Helen119 in reply to Beckany

thank you xxxx

fishponds profile image
fishponds

sending hugs xxx

Helen119 profile image
Helen119 in reply to fishponds

thank you xxx

Cantiga profile image
Cantiga

thank you for posting this. I hate being a burden to my family. Your wonderful loving spirit comforts me. And thank you for saying that Colin is at peace. Three years is a long time. Bless you

Helen119 profile image
Helen119 in reply to Cantiga

thank you xxx

Suncitywest profile image
Suncitywest

it has been a hard road for you both but at least he is not in pain. Take care of yourself.

Helen119 profile image
Helen119 in reply to Suncitywest

thank you xxx

Heady profile image
Heady

Time to let others do the caring, you just love Colin and hold him tight. They are extremely precious moments and will see you through the dark days ahead.

Sending a very large hug and much love

Lots of love

Anne

Helen119 profile image
Helen119 in reply to Heady

thank you Anne xxx

Upturned profile image
Upturned

I feel your pain x

Helen119 profile image
Helen119 in reply to Upturned

thank you xxx

Scottoppy profile image
Scottoppy

Stay strong, all good wishes XXX

bichonbear1 profile image
bichonbear1

Wishing you all the strength in the world. My thoughts are with you x

Helen119 profile image
Helen119 in reply to bichonbear1

thank you xxx

Mpsp profile image
Mpsp

Love you and may god give you strength

Thank you for sharing with us and giving

me strenght for the future .Love & Hugs.

Helen119 profile image
Helen119 in reply to Mpsp

thank you xxx

Sawa profile image
Sawa

So much strength and love coming your way during these days. My hubby went on his final journey 5 years ago, very similarly, with a syringe driver to keep him comfortable and calm as he transitioned. I remember those days well, but what stands out the most for me was how peaceful the house became after all those years of constant go, go, go! Friends and family came to say their last goodbyes and there were as many laughs as there were tears. I loved being able to snuggle up to him and just be. It's so incredibly sad to say goodbye, but I really hope that at this time you are both surrounded by love and peace. S

Helen119 profile image
Helen119 in reply to Sawa

thank you xxx

ncgardener799 profile image
ncgardener799

Our hands are holding yours!!! HUGS Pat K

Helen119 profile image
Helen119 in reply to ncgardener799

thank you xx

Sebuly14 profile image
Sebuly14

Sending warm hugs to you and Colin during this difficult time!

Helen119 profile image
Helen119 in reply to Sebuly14

thank you xx

Regann profile image
Regann

Helen, thanks for sharing this. My husband is still able to eat, and I am dreading the stage where you are now, waiting and watching. I am so glad Colin is not in pain or discomfort. I relate to your feeling of being lost already. Because you are sharing your experience, I am able to anticipate that phase and know how important it is to communicate. My thoughts are with you both.

Helen119 profile image
Helen119 in reply to Regann

thank you xxxx

audreydrs profile image
audreydrs

My heart aches for you. I know we will have to reach this stage at a later point as we go through this horrible disease. Take confort in the love and care you provided as this disease takes a toll on the caregiver too.

Helen119 profile image
Helen119 in reply to audreydrs

thank you xxx

Polygon profile image
Polygon

Sending prayers and hugs to you. May you have the strength and find peace as you go through this difficult time. Take care.

Helen119 profile image
Helen119 in reply to Polygon

thank you xxx

Purrlie profile image
Purrlie

Dear Helen119, We have been where you and your beloved Colin are right now. "Comfort care" for him, and any comfort you may find in knowing he is not suffering any pain. I send you love and many hugs, Purrlie

LuisRodicioRodicio profile image
LuisRodicioRodicio

A big hug.

Luis

Richard33 profile image
Richard33

Helen,

I am so sorry to hear. You have been amazing to devote so many years to looking after him. I fear on this forum we all are (or have been) on the path you are on. I am not looking forward to my turn.....

Sending love and strength.

Richard x

Helen119 profile image
Helen119

thank you xxx

AJK2001 profile image
AJK2001

Thinking of you, so glad you have been able to stay at home together. This was so important for my Mum and it gave me much solace that I was able to do that for her. The last few days were very peaceful and Mum just drifted away, one last hand clasp and .......

Helen119 profile image
Helen119

thank you xxx

easterncedar profile image
easterncedar

Be very kind to yourself, very gentle. This is so very hard. Sending love.

Helen119 profile image
Helen119 in reply to easterncedar

thank you xx

Dickwin profile image
Dickwin

Helen, I am so sorry you have reached this stage. My heart goes out to you and Colin. He is lucky to have you at his side. Keep him close and let him know how much he is loved.

Helen119 profile image
Helen119 in reply to Dickwin

thank you xxx

Tippyleaf profile image
Tippyleaf

Thinking of you both at this difficult time

Love and hugs Tippy xx

Helen119 profile image
Helen119

thank you xx

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