PSP Pain: My husband was diagnosed with PSP... - PSP Association

PSP Association

9,266 members11,356 posts

PSP Pain

ladydog255 profile image
1 Reply

My husband was diagnosed with PSP in Jan. 2019. He had an MRI after complaining about headaches. The pain has not lessened, and now includes his jaw. He complains that his heads feels like it's going to explode, and it hurts to move his jaw to chew. And he has become sensitive to light and sound! He tales Tramadol for his degenerative spine (after breaking it 40+ years ago) and Carbidopa-Levodopa, neither of which work on the headaches. So, he sleeps most of the time. Anyone else suffer these issues? Any suggestions?

Written by
ladydog255 profile image
ladydog255
To view profiles and participate in discussions please or .
Read more about...
1 Reply
sammy90210 profile image
sammy90210

sorry about the difficulty - you must have discussed about medication with the doctor as well but recently I heard about people getting relief with cannabis based products - of course, with a PSP patient it's much more difficult to manage but you can check with his doctor if it's OK to try - there are some ointments, creams and liquids for oral consumption too

I recently saw this and it could give some idea (we don't have such pharmacies where I live) - youtube.com/watch?v=05jEknL...

You may also like...

PSP and pain//jaw lock

meds, I find she has jaw lock alot of the time which is a symptom of this stage of PSP so maybe...

Is PSP usually painful?

pain is because all his muscles are so stiff and contracted. It’s painful to have his position...

Pain with PSP

he used to have -- his hip from a problem in his lower back and neuropathy in his feet -- has...

PSP and knee pain

2 weeks ago my hubby, about 3 yrs with PSP, started complaining of constant right knee pain. Any...

PSP and painful legs at night

My mum has PSP and is up 6-7 times during the night going to the toilet . She is complaining of...