Another book on PSP

[Christine47]

 Kathryn Leigh Scott has written a new book that may be of interest.  Last Dance at the Savoy: Life, Love and Caring for Someone with Progressive Supranuclear Palsy. The book is now available in print and in electronic formats and the audiobook will be available shortly. The foreward was written by my husband's neurologist.

[NannaB]

Thanks for the info. I'll look it up.

X

[Yvonneandgeorge in reply to NannaB]

Thank you me too xxxxx

[41273416a]

Thank You, I'll have to wait for the audio book.

[york]

Thanks I've just checked this and it's available via amazon in 3 different formats 

Kindle  £9.99

Paperback  £12.45

Audio  Download  £14.69

[skoe]

This is great news and I will get on to the PSPA to promote. Check out 'Charity begins at home' by MICHAEL Koe 

[BindiLeech]

Wow, thank you so much for letting us know - I have been wondering about any books etc that may have been written, either by a "Sufferer", a Carer or a Health Professional.  As I am living in Australia, thank you also for letting us know from where we can access the books - ie Amazon.  cheers, Bindi

 

[Amilazy]

Thanks for the information have requested loan from the local library, they are trying to find it in the system but they are usually very good.

[Yvonneandgeorge in reply to Amilazy]

Tim how are you doing? Xxxx

[ketchupman]

I heard it was a very good book.  The author spoke at the most recent CurePSP Family Conference a couple of months ago.   I ordered mine on Amazon and am supposed to be receiving it today.  I also bought 2 other books for my Kindle that were written by caregivers of PSP patients. "Tears in my coffee: Living With Progressive Supranuclear Palsy" and "He Lives On: A Man's struggle with Progressive Supranuclear Palsy: A Daughter's struggle to heal".  Each were only $2.99 US and appear to be a short read.

Ketchupman

[gypsywoman1947 in reply to ketchupman]

I am living in Uk and have just found the book He lives on and downloaded on kindle but the first one you mention does not come up in searching,Tears in my coffee......do you know the author ???? Thanks

[ketchupman in reply to gypsywoman1947]

Teas In My Coffee was written by Shauna Herrington.   Here is the link in Amazon:  smile.amazon.com/Tears-My-C...

[gypsywoman1947 in reply to ketchupman]

Thank you , what a quick reply.....the marvels of technology!!

Best wishes x

[shasha]

I TOO WILL HAVE TO WAIT UNTIL THE AUDIO BOOK COMES OUT

[goldcap]

Christine,

I just saw this after I posted. I am late in checking emails! Did you get to go to the book signing on the 9th? Have you been going to the support group? I have been thinking about you lately wondering if you got into the trial study. We did not. He is too far along I wish we had remained with our prior Neurologist.( At least I could get him on the phone). I hope you and your husband are well and and he is still in the early stages. Mine is much worse-sad to say. One infection after another and several hospitalizations. Would love to get together and catch up. 

Take care