Our Journey is over: Our journey is over for... - PSP Association

PSP Association

7,580 members10,212 posts

Our Journey is over

Monapapa profile image

Our journey is over for my dad with PSP. He left us on 5th July. He was a man who never felt sick in his life. A person who would never start his day without yoga practice for 75 minutes. He was already broken when doctor told him that this disease do not have any cure. He came to visit me at US on 2018 and luckily I got appointment with Penn medicine. Doctor explained us the disease and our fight started with the dreadful disease. Last few days he was choked a lot and then he had cerebral attack and left in peace after having the last tea in morning with my mom. We made home hospital and never put him in rice tube . My mom was his caregiver along with designated nurse at home. Nurse guided us during last minute and he actually left in arms of my mom. My mom and dad had special bond and they were connected to each other since my mom was 13 years old. I hope now he is free of pain and happy with God beside him.

Hero of my life. Wish I could hug him once more. This group was great help to me and I used to guide my mom with all the advises shared by you all. Big thank you to all!!!



17 Replies

So sorry Mona. It is hard but also a relief that he is free now. My thoughts are with you all during this difficult next stage. Hug from Jean xx

My sincere condolences to you and your family for the loss of your dear father. May you hold close to your heart the fondest of memories that you shared together. Bless you.Kerry

Sending love to you Mona, so sorry for your loss. Keep hold of the special memories xx

Sending big hug and much loveLots of love


What a beautiful bond your parents had. What a beautiful story. Sending you big hugs from NY.

Thinking of you & your Mum at this sad time xxx

So very sorry for your loss. Hugs and prayers.


My thoughts are with you and your mom during this sad and tender time. Sending a big hug, Purrlie

Sincere wishes for strength and courage

So sorry for your loss. Sending warm hugs to you and your family .

Sincere condolences Mona to you and your family. Your dad is now free from this evil disease and whole again. I hope the many happy times you all shared together with him will help you through the days that lie ahead.

Lots of love


Sending much love and hugs to you, your Mom and family. So sorry for your loss.Thinking of you all, Sarah Xx

Sorry for your loss Mona x

A big hug.Luis

Sorry to hear about your dad, Mona. The nature of this disease is that it is not linked to the patient's health history. I lost my dad last year to PSP. His decline was over just 6 months. He never spent a night in the hospital all his life until the PSP diagnosis. Losing him was very hard for us to accept. I can empathize with what you are going through. Choking while eating is an end stage symptom. That often leads to aspirational pneumonia. My condolences to you, your mom and everyone who is grieving his passing.

Monapapa profile image
Monapapa in reply to MARKJ9

Yes Mark. His last few days was tough. Lungs were completely damaged due to constant choking and aspiration pneumonia.

A heart broken news Mona dear. so sorry to hear that sad news. I pray you and specially your mother will go through peacefully with this grieving time and blessings for your dad's soul. aameen. Be strong & love always

You may also like...