There are a few things you could inquire about to help you both get better sleep:
As my mom’s PSP progressed and she could no longer use the commode independently, she stopped consuming any liquids after dinner and trialed a bladder medication to reduce her incontinence, while wearing comfortable pull ups as a back up. These supports were helpful for a short time, and then my mom agreed to trial an in-dwelling catheter so she could sleep better through the night, with no limit to hydration after dinner which was beneficial. My mom continued with in-dwelling catheters for her remaining years. There are pros and cons with any treatment or strategy, and an in-dwelling silicone catheter was what afforded my mom a better rest. An in-dwelling catheter does require regular replacements (my mom’s Homecare nurse, in Canada, changed her catheter monthly) and careful hygiene practices to avoid/minimize infections. My mom’s GP sent a standing urinalysis order to a neighborhood lab so we could check for infection whenever we suspected this (symptoms can be atypical, like confusion and excessive fatigue versus pain and fever). I hope some of this information will be helpful to you. Please use all medical and Homecare supports available to lighten your load so you can take good care of yourselves.
PSP Diagnosis Changed to PD
Things to do for PSP – sing a PSP country song (badly!)
CBD diagnosis
struggling with PSP
Pain - Clenched Fist
