This is my first post on here. I generally don't like posting personal things online but given how rare this disease is and how little support there is I thought I should reach out.
My mum was diagnosed about 18 months ago but that was after about 18 months of us knowing something wasn't right but we had no idea what it was. After seeing 3 neurologists, they all agreed PSP and it all made sense.
Our main issue was falls, out of the car or backwards. And the change in eyes, she also kept smashing dishes and then withdrawing a lot.
She has been doing fairly well & remains independent in a suite in the house. She can no longer cook or drive but otherwise looks after herself as long as we are around.
But the issue of incontinence has come up. We have notice the smell of urine more and stool on the toilet seat.
Part of me is wondering if the stool is because she is unable to clean herself properly.
I have tired to talk to her about disposable underwear and wet wipes but she is telling me that she isn't having problems. Could she be leaking urine and not noticing? It is hard to get her to agree to recognizing there is a problem.
Sorry, it feels odd to be posting such personal stuff on a site where I know no one! And please forgive me if I don't reply to everyone's replies. We are in the unfortunate position of having to become care givers to both my parents right now as my dad is in the final stages of cancer and we all have toddlers! But I do appreciate everything I read!!
Finally, when my dad passes my mother will be coming to live with me. We have a room set up for her but it is a bit of a distance to the bathroom and I'm worried about the night time. Any success with a commode?