Kevin we have all been thinking about you, you are an amazing man so selfless, I can honestly say there are not many gentlemen like you. Sending you lots of love and hugs, thinking about you at this sad time. Yvonne xxxxx can tell you to grieve at your own pace, but remember we are all here for you xxxxxx
You were the 'first responder' to my first post, and have offered so much support and knowledge to me and to all here. And there are a number of us here who will support you on this new road forward since we have already travelled in the same direction.
I still plan to get to one of those Brass Monkey happenings and meet you - once this MAD WORLD has settled down, but sadly not for at least another year. Have had to cancel all travel plans for this year, and who knows when this Pandamnit will die down!
Here, we are waiting to see if it is safe to stick our necks out a bit further - or whether opening the fast food outlets has set infection off again!
You are so lovely Jen after all you have been through with PSP and children's health issues too. (Can I call it that?) I'm not surprised they filmed Lord of the Rings in Kiwi Land... You are mythical!
I so look forward to meeting you.
When this Covid subsides. When it is safe maybe we should have out own PSP forum conference!
Most of the talks will be chats in the dining room and the bar!
I am learning that one. Liz's friends phone and tell me tales of how lovely she was. By the time I get off the phone my eyes are running.
My heart goes out to you. You were one that set the standards of love, commitment and care that were achievable for me. I was often aghast at your Streangth throuout it all.
Such a deep love.
And, still you come forward here with your hard won knowledge and wisdom.
Wonderful man you are.
It's beautiful for me to remember you both as you were.
You have been an amazing tower of strength for us, now we are here for you whenever you need a friend. Rest now, just take each day as it comes and deal with it in whatever way you find most comfortable. Take care.
The tears were too much this morning and so I went back to bed, after a cup of tea and feeding the cat and going through her morning routine of me paying attention to her so that she could be aloof. (Cats!!!)
Then re-booted the day and coped. Yes, rest. You are so right.
I think the volume of heartfelt responses to your announcement of Liz's passing was a testament to the love and respect this community have for both you and Liz. I’m not surprised that you feel moved by the support shown Kevin, much deserved dear man.
Oh Kevin just take your time and let the tears come and they will and they will keep coming and take you by surprise. It’s a year and 4 months since I lost my lovely Steve and yesterday I suddenly burst into tears and not even sure where it came from, probably because I was planning the next bit of my garden and we made the garden together. In a funny sort of way it does you good to have a cry but then as you did you need to move in with your day and I always find having plenty of plans and things to look forward to really helps.
I am sorry Liz has gone Kevin. No matter what you do now you need time and space to gather your thoughts and feelings.
I know you wouldn't wish Liz back with this vile disease. To say she is free now seems of little reward. Liz will want you to take care of yourself now, take as long as you need.
Thank you for your help over the past 2 years. You are one of life's special people.
Kevin, it is the measure of you that even now, in your darkest of places, continue to thank people and offer support and advice. You Sir, are a Giant among Giants. I send my love, support and massive hugs and pray that you will find Peace and Comfort in your beautiful memories of your Dear Liz. God Bless you Kevin. 🙏🏻🙏🏻💔💔
It has been a long time since I posted on here and as I now only get the weekly digest, I have only just heard about Liz's passing. What a fighter she was and what a great advocate you were, and still are, for those of us struggling to deal with this devastating illness. Many a time I would get onto our forum to seek information on something new and difficult that had cropped up in Drew's illness and you were always there with some positive advice and understanding. Incredible as it seems, Drew passed away over 2 years ago and I have no idea where those 2 years have gone. I can only say that, somehow, I have come through this better than I imagined possible. Having been together for 50 years, Drew left a huge void in my life that l'll never fill. However, I have wonderful friends and family and returned to activities I had previously enjoyed. As you know, at this time it is important to accept all the help offered to you and not to think you can do it alone. You will be in my thoughts and prayers, Kevin. Be good to yourself.
Others have said their condolences so much better than I could, but I can offer one glimmer of hope from having been 22 months down the road you're now on:
It feels unbearable at first, and for what seems like a long time, but it does get better. The loss is always there, but the huge gaping hole in your life heals up around the edges. At some point, you seem to get on top of it, instead of it being overwhelmingly on top of you, like a tsunami. It somehow becomes manageable, and the pain becomes bearable. You begin to feel "more normal" - at least more calm. Memories can become a pleasure instead of an agony.
Kevin , I missed the post ,so sorry mate my thoughts are with you , You did a brilliant job for Liz and for a lot of us as well . Now is an especially hard time but just remember all your friends are with you .
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