Carers advice and support during lock down - UK only I'm afraid.

[Kevin_1]

I cam across this this morning.

My heart goes out to all sufferers and carers who have the added burden of Covid and lock down to contend with. It must be extra tough for many right now.

I hope this is of some use.

There is the PSP Asoc. help line too.

"Carers UK – advice for unpaid carers

Carers UK has a detailed advice page for all unpaid carers here: carersuk.org/help-and-advice

You can contact their advice line by email on [e-mail] by telephone Helpline service 0808 808 7777. Note: their Helpline hours have been extended to 9am to 6pm, Monday to Friday, to help carers access information at this time. They also have an online forum run by carers for carers full of tips and information where carers have been supporting each other carersuk.org/forum/support-..."

[Satt2015]

Still caring Kevin, still advising, still helping! Amazing man! Thank you! X

[Nanny857 in reply to Satt2015]

Amanda those are the same words I was thinking as soon as I read Kevin's post and before I saw yours.

Hope you and your mum are keeping ok. xx

[Nanny857 in reply to Satt2015]

Hi Amanda, how do you feel about another 'meet up' sometime after we are given the all clear to travel.

[Satt2015 in reply to Nanny857]

Hi Marion, yes absolutely, however I believe this will be a good couple of years away.......I for one, won’t be going out and behaving as I did prior to covid 19. By that I mean I won’t be going to restaurants or pubs or anywhere basically where there are many people. I don’t believe everyone will be safe until everyone has had a vaccine, so that could in theory be many months if not years away.....that’s not to say if when the rules relax, someone else wants to organise a meet up, but I won’t attend for some time yet. Hope that makes sense and that you and your lovely sister are ok x

[Nanny857 in reply to Satt2015]

I understand Amanda and it makes perfect sense. Praying that scientists and researchers find a vaccine sooner rather than later.

Take care xx

[Hidden]

Thinking of you & sending Vertual Hugs across the pond. Your information is always so helpful & appreciated. Words sometimes fail me but l will say U R Loved & Liz will be in my heart always. Take care, rest, eat healthy and make a small target to throw spoons at (saftey first-be mindful of cat). Sending hugs... Granni B

[Kevin_1 in reply to Hidden]

Granni B

You had a special place in Liz's heart.

I would read quite a few folks posts to her, but she insisted on getting all of yours.

She found you inspiring, as do I!!!

Thank you for being there.

Warmly

Kevin

xxx

[Yvonneandgeorge in reply to Kevin_1]

I so agree with Amanda you are a selfless person xxxx

[Nanny857]

Why am I not surprised to find you here - because you are very caring, always thinking of others, putting their needs first before your own.

Please take care of yourself and hopefully we will have another meet up, if not in this year, the next. xx

[Kevin_1 in reply to Nanny857]

Hi Nanny 857

When it's safe a meet up and seeing you again would be wonderful.

Thank you for your kind words. I am looking after myself fairly well. This forum is such an understanding place it feels OK.

Suddenly I am the student again and should I struggle I shall most definitely reach out to others here who have trod this new path I am now on. There are so many caring, wise and experienced folk here and I count you as one. But truth be told there are more than my fingers and toes put together so I must just say that they are countless.

Hugs to you

xx

PS - I am prone not to nurture my body at these times. A common thing with grieving and loss. So I make a point of making food, spending time cooking 'for me' Not easy to do at times, but a good way of nurturing the heat too.

[Nanny857 in reply to Kevin_1]

I understand completely. Doing something similar. xx

[Kevin_1 in reply to Nanny857]

Nanny857

Sending you a big virtual hug.

You are a beautiful soul.

xxx

[Nanny857 in reply to Kevin_1]

((((( )))) these are my virtual hugs back. 😊

[Kevin_1 in reply to Nanny857]

I feel them

(((())))

[Katiebow]

Dear Kevin, your compassion towards this community is unending despite what you are going through at the moment. I have never met anyone who is selfless to the core. I salute you but also want you to take time to make sense of your own personal circumstance. Please put yourself first for just a while.

Sending love

Kate xxx

[Kevin_1 in reply to Katiebow]

Hi Kate

Your words are born of understanding and I hear you very clearly.

Thank you for stepping forward and speaking. I know it is from much experience and concern.

I am taking time regularly through the day to grieve. I habitually practice a constant checking and processing of my thoughts and feelings. A habit borne of the therapy work I used to do.

I let those feelings of loss and sadness come to the fore, as well as the tearfullness and I sit with them many times a day. Accepting them and letting them flow though with the thoughts which attend them.

I also take time to remember the good times and spend a lot of time holding Liz in my heart and just being with her there. Meditating often through the day and being open to what surfaces.

I have a lot of hours in the day and a little time posting here is a release from that. In fact reaching out to others is a healing in itself. Projection being used positively? But, with an awareness of that dynamic. Each post I make being seen and understood as a my need for healing as well. And, a constant checking for avoidance, yet giving myself permission to avoid at times when I need some space from the grieving. Paperwork is good for that!

But, I am not some super being and I have taken your words to heart.

Thank you for them and for reaching out.

Warmly

Kevin

[Kevin_1 in reply to Kevin_1]

And, I have spent my life avoiding paperwork.

I would never have expected that I would use it to avoid!

Oh, if my Consultant Psychologist could see me now!

Life can be obtuse!

Chuckles

[Yvonneandgeorge]

❤️❤️❤️❤️

[Cazash]

If tears are diamonds we would be rich beyond our wildest dreams.

But in reality we already are as each and every diamond is a treasured memory of our loved one

As a relative newbie to this forum I only joined early last year and only a few months in we had already lost my dad to a very rapid version of PSP. Literally 6 months from unsteady and falling to the end.

Having read so many posts a lot of which were your own you gave such a straightforward explanation that we could all relate to and understand at a time when the world in general and dads illness especially was a very scary space.

As many have said here your strength of character and your love for your beloved Liz always shines through everything you write even now. It gave me such comfort that we were not alone but part of such a huge and loving virtual family.

So thank you for holding my virtual hand during our journey through PSP and hopefully like the rest on this forum now is our time to hold your hand and guide you down this path of grief.

It hits hard at times and then withdraws to a manageable state only to rear its head again at the most strange of times. Totally unexpected. But I quickly learned to ride it out and accept those diamond tears for what they were and indeed still are.

So Kevin. We are here beside you on your journey. Support. Guide. Live and love. We are all in this together. You will never walk alone.

Stay safe. Stay strong. And catch those diamonds.

Much love and respect

Caz

[Kevin_1]

Caz

What beautiful words and such hard learned wisdom.

I shall never think of tears as anything but diamonds now. That thought has really captured my imagination.

I feel so 'not alone' with so many loving and supportive posts. It has made my current journey that bit easier.

Thank you for reaching out in such a lovely way.

Warmly

Kevin

[georgeg25]

Hi Kevin. Why am I not surprised to find you still posting with support and guidance. Your unselfish and compassionate comments sum you up. You are an amazing person who is loved by so many across this forum. However, PLEASE take care of yourself and allow yourself to grieve for the loss of Liz. I am sure she would want you to do that. You and Liz are still in my prayers and there you will remain.

Take care Dear Friend. 🙏🙏❤️❤️

[Kevin_1 in reply to georgeg25]

I will George

This morning one of Liz's Sisters asked me what was Liz's favourite rose. She wanted to plant one in her garden.

I feel really rather upset.

I am a tad more fragile than I had thought.

Thanks for your timely words.

Warmly to a dear friend

Kevin

[georgeg25]

It's allowed my friend. Let it happen. Your years are shared. 😭

[georgeg25]

Sorry should be tears. Predictive text. 🙄

[Kevin_1 in reply to georgeg25]

Chuckles - You are outrageous!

[Aprilfool20]

Glad to see you are still here. I feel so lost at the moment as things get worse but reading your posts makes me feel more connected . Hope you’re able to keep going.jaynexx

[Kevin_1]

Hi Jayne

I think many of us are feeling a little lost, or rudderless at the moment. I am.

The world as we knew it went on hold.

We'll get through it.

Thanks for your good wishes. They help.

Warmly

Kevin

xx