As we all know on this site, it is extremely difficult to explain to people what PSP actually is. I find that carrying a supply of the printed information cards available from the PSP On-Line shop helps. I hand these out to anyone who asks about the illness (even those who don't sometimes!) so that we can spread the word about this very cruel and debilitating illness. I am of the opinion that the more people who know about the illness the more likely we are to generate enough interest into getting more research done to find treatment and ultimately a cure.
For anyone who is not aware already, these cards are free from the PSP On-Line Shop.
SuzieQ
Written by
SuzieQ
To view profiles and participate in discussions please or .
For those of you in U.S. you can get the cards at "curepsp.com ". I am never without them. I find even the personnel in the emergency room have never heard of PSP. Emergency tech drivers etc. are so thankful to get them. I have even copied them onto medication list with all other emergency info such as emergency contacts, past medical history and past surgical history. It helps me greatly when under pressure at times of need.
like lots of you I keep a supply of cards and am forever handing them out, I sometimes feel like changing the record.
Last Christmas I put an information card in each Christmas Card I sent, I got a lot of feed back and try to remember to send them in birthday cards as well. Will send them again in Christmas Cards this year!!!!!!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.