PSP Association

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If tears were diamonds we would be rich beyond our wildest dreams

As dad nears the end of this PSP road (only several months so been a sprint rather than a marathon I feel). We look back and celebrate his life and look back on all he has done. If I could gather up all the tears over the last few days that friends and family have shed and turn them into diamonds it would light up the world with a blinding light and just for a moment make everything seem all right We would all be rich beyond our wildest dreams

When the moment comes we will of course be devastated but also I guess feel relief that he’s no longer suffering and in his own way he’s bizarrely ‘beaten’ this dreadful illness

The angels are waiting I know and it’s only a matter of when ...... but we always want ‘just a little bit more time’

God bless you all for your dedication and loving care of your nearest and dearest This forum has been a godsend to me with the comments and true understanding of this road we all travel and has helped us immensely with our journey

Peace to you all

Take a step back just for a moment today and truly absorb the love that’s around you You all deserve it and give yourselves and your partners a huge hug from me to each and everyone of you

Take care and god bless ... stay strong

Caz 💕

25 Replies

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What a wonderful peaceful post. We can all feel your pain and those of us that have been in place you are at this moment, know full well the relief that the end near. This is an evil, evil disease, but one thing in its favour, it does allow a peaceful ending, I hope it will for your Dad.

My heart goes out to you at this very painful time.

Sending big hug and much love.

Lots of love

Anne

Thank you 💕

Thank you. Dad passed away peacefully this afternoon. One more angel in heaven. 💕

May he rest in peace, finally free from PSP. Look after yourself now, grief is just a bumpy road as PSP. It takes time, there is only one way to do it and that's your way.

Sending big hug and much love

Lots of love

Anne

Dear Caz

Sending much love to you and your brave dad and wishing him peace on his final journey.

You are in my thoughts at this sad time

Lynda 💜

💕

Caz

I hope your final days and hours with Yayour Dad arep peaceful. As you say soon your beloved Dad will have beaten this cruel disease.

God bless you both and the rest of the family.

Marie x x

💕

My heart goes out to you

I get you

what a beautiful post in such a poignant and sad tine for you all. your dad musy have been a wonderful man, wishing you all strength and peace at this time x

I feel for you, I've been where you are now and understand the sadness but also relief that his horrid journey is almost over.

Thinking of you both.

Sue x

My deepest respect to you and your family ( including your Dad) for the way you proceed through this journey. Like many others on here, I have been where you are, so can understand that confusing mix of sadness and relief. Hold him close and let him know how much you love him. I send prayers and big hugs to you all. 💔💔💔

Thinking of you and your lovely dad and that the ending will be peaceful one. Sending love and a big hug, Nanny857xx

I know how you must be feeling, last week John had a mini stroke followed by a chest infection, I have never seen him so ill and feared the worse, thankfully antibiotics helped him through and I have him back again, I don't want to be there again, but I know we will, can't bear to think about losing him, my heart is so torn,not knowing how much longer we have or have to suffer.

You and your family must be really suffering and all we can do is be there for each other, please do keep writing in and feel the love we can all share from this wonderful blog.

God bless. Jean xx

My husband's journey is so different -- 13 years of CBD now -- but the love is all around, as you say, and I was reminded of that today when two men who had known my husband as a boy and young man learned of his condition and shared their memories of how good it was to know him! So kind of them--Yes, the angels are waiting and angels are with him now as you care for him.

Marilyn

My husband also had more of a " sprint " at the end. Painful as it is that does bring comfort. My thoughts are with you all.

Lots of love from Jean x xx

What a beautiful post 😢. My sister told me yesterday that the singer Linda Ronstadt was originally diagnosed with Parkinson disease...her doctors have now declared she has PSP...one of my first thoughts was I hope she finds this website, everyone here understands the ups and downs and the sadness that we all feel on a daily basis, I am so sorry Caz, my thoughts and prayers are coming your way 💜💋💜

Thank you. Dad passed away peacefully this afternoon. 💕

Hello Caz, so sorry for your loss, your dad is free at last, I'm sitting here in tears, im looking after my mum who is at the end stages, it's only a matter of time, I keep praying that she will fall asleep and pass away the suffering is devastating beyond belief, as in feb/march she was walking, she only became ill after a knee replacement in december, then it all changed, she had no symptoms before that, we could see, the doctors think the operation triggered something and now she has it all, it's very sad I hope she slips away peacefully, sending hugs.Julie xx

Sending love and hugs to you too Julie as you go through this final journey with your mum.

Its so sad.

Lynda x

Thankyou for your kind words lynda, I'm hoping it's all very peaceful. Sending love to you too.xx

So sorry Caz

Just read that your dear dad has passed.

Sending love and hugs to you at this sad time

Lynda x

So sorry to hear that you have lost your Dad to this awful disease. At least he is now free of this awful condition. Sending you lots of hugs at this difficult time xx

My Dad is still on his journey, and I'm flying back to the UK in about 3 weeks which has given him and me something to look forward to.

Take good care of yourself xx