Psp

[Trillo]

My husband Mick sadly passed away on Easter Sunday from this terrible ilness, he fought to stay with us till the end but it won in the end . Not quite 3yrs since diagnosed but the signs were there at least up to 2yrs before. RIP Mick.x

[Heady]

I am so sorry to hear that Mick has lost his battle with PSP. May he rest in peace, finally free from this evil disease.

Now it's time to look after yourself. Use your caring skills on you. Be kind to yourself. This part of the PSP journey is just as hard and extremely bumpy. It will one minute at a time for a quite a while yet.

Sending big hug and much love.

Lots of love

Anne

[Trillo in reply to Heady]

Thanks Ann, indeed it will, as you say one min ar at a time, our grandaughter birthday day before he died and our daughter and her daughter, day after he was cremated, just slotted himself into the middle, terrible ilness, robbed him of everthing. Going for a few days away , with family. Thks xx

[Heady in reply to Trillo]

Good for you. It won't make you feel any better or any worse, but the love of your family around, always helps. I did exactly the same, went skiing, first time ever. It was lovely learning to breath again in the clear mountain air.

Lots of love

Anne

[Trillo in reply to Heady]

Thats sounds really good and breath taking and relaxing to clear the mind

[Robbo1 in reply to Trillo]

So sorry to hear of your loss.

As Anne said, it will be a rocky road finding your feet without having the responsibilities of caring. Your emotions will be up and down, you may feel like doing nothing or doing everything. Just go with the flow. Be kind to yourself. Big hug. Rx

[Hidden]

Sorry to hear.

[Trillo in reply to Hidden]

Thanks

[Satt2015]

Dear dear Mary

I’m so so sorry

Huge condolences to you all

Much love darling x

[Trillo in reply to Satt2015]

Thks Amanda, hopefully we shall meet you again the girls and i. X

[Satt2015 in reply to Trillo]

Hope so Mary! X

[AliBee1]

Love at this time for you and your family. At last he is in peace now and I pray that one day you will be at peace too and your memories will be happy not sad. Big hug AliBee x

[Trillo in reply to AliBee1]

Thks very much

[doglington]

Sorry to hear that, Mary.

It is always a shock even when we feel we should be ready.

Agree with Anne that the grieving stage is as unpredictable as PSP

Give yourself time and remember there are many of us here for you still.

Lots of love from Jean xxx

[Trillo in reply to doglington]

True words thank you

[Hidden]

Heartfelt sympathy to you and your family. Trillo, Words fail me this morning... l am glad you can get away with family for awhile. Sending hugs to all... Granni B

[Trillo in reply to Hidden]

Thanks very much

[Trillo]

Thks to all

[dollydott]

I'm so sorry

Sending love to you and your family at this sad time.

Lynda x

[Trillo in reply to dollydott]

Thank you.

[SewBears]

I’m so sorry for your loss! I hope that he went peacefully. I am speechless right now but please know that you’re in my thoughts.

Xoxo ❤️

[Trillo in reply to SewBears]

Thank you, he had a hard 2 weeks ending, he is at peace now , now and no more suffering from this awful ilness.

[Yvonneandgeorge]

Such sad news my heart is with you xxxx

[Trillo in reply to Yvonneandgeorge]

Thank you, so sad, we shall all miss him. He is release from this awful ilness

[Yvonneandgeorge]

Yes I hate PSP such a horrible illness xxxx

[raincitygirl]

Dear Mary, I am so sorry to hear your news. 💔 I know we are relieved for our loved ones, but it is a devastating loss all the same. Like the others say, just take care of yourself now and be HUGELY patient with yourself. This grief business really takes a while.

We are still here, and if you need us there are lots of us who are living on the other side of the cruel disease now.

Hugs and condolences 🎇🕊❤️

Anne G.

[Trillo in reply to raincitygirl]

Thanks Anne, exactly what you said, even thi we know the end is near its a shock. Its when everything dies down, it all kicks in. ., x ❤

[Nanny857]

So sorry for your loss, Mick is now at peace, Free from PSP. Now you have to take care of yourself, one day at a time. Lotsof love Nanny857xx

[Marie_14]

Mary so sorry to hear your sad news. At least Mick is free of this evil condition now. As everyone has told you please take care of yourself now. We are here for you still when it gets too much as it will at times.

Marie x. RIP Mick

[Dadshelper]

You have my deepest condolences. He is at peace with no more pain now.

Ron

[lindaD_]

so sorry ,hes free at last from this awful disease.hard for us left behind. all we can do is remember the good times we had .xx linda

[Angela41263]

I'm really sad to hear this, I lost my dad to PSP last November. His last few months were so hard on him. You must have been through such a dreadful time, and now it's time to make time for you. Take care of yourself, and live your life the way your husband would have wanted xx

[demlac]

Sending big hugs to you Trillo x

[Dickenson2]

So sorry to hear the news but he is now free of this terrible disease and now is the time to look after yourself. Xx

[D0ttieL0ttie]

Sending you my love and deepest sympathy.

Geoff's end is near too and so my empathy for you is heightened/

[Katiebow]

So sorry to hear your sad news Mary but it is a massive release for him, PSP and the other related diseases are just too awful to endure. Lost my husband almost a year ago to PSP and I knew he had had enough suffering, it's a blessing for them to be free of the atrocities of the disease bit hard for those left behind.

Sending my love

Kate xxx

[Hidden]

I'm so sorry for your loss, it's a wicked illness and so hard for us too, watching our loved ones fade away.

Mick is 'whole' again now and standing by your side.

Big hugs

Sue x

[AJK2001]

So sorry, thinking of you and your family at this sad time.

[LuisRodicioRodicio]

A big hug.

Luis

[georgeg25]

My deepest condolences to you and your family. RIP.

[AngelineAmy]

Sorry for your loss

[Jazzercise]

So sorry for you my husband was diagnosed in January terrible disease, thinking of you and your family.xx

[Inparadise]

My condolences to you and your family. Take good care of yourself, and be proud that you were there to care for your husband.

Kerry

[daddyt]

So very sorry for your loss - new wings and at a time of rebirth.

Tim xx

[Cuttercat]

I join everyone in sending my condolences. What a blessing to leave this world on Easter.

Three years is a long time with PSP. My husband had “official” PSP for that length of time but many signs beforehand

We are here for you as you travel the next journey. Prayers for you and your family

Cuttercat

[racinlady]

I'm so sorry to hear about your loss. My heart goes out to you.

Hugs,

Pat

[connc]

I am so sorry for your loss. You and your family are in my prayers

[Artteach10]

PSP is so cruel. So sorry to hear about your Mick. Praying for you at this hard time. Nancy❤️

[Hiking13]

So sorry for your loss sending you lots of hugs

Sarahx

[Tttp]

So very sorry about your husband, such a dreaded disease, take care of yourself. Nettie

[teresa1988]

I'm so very sorry for your loss. May you find comfort and peace in the days ahead.

[MrWhippy123]

Sending love. A xx

[jabberwocky45]

So sorry to hear your news. May he rest in peace. We are only at the beginning of this disease albeit signs of a change in mental and physical condition for nigh on 2 years before. I try not to look too far forward cowardly I know but...... thoughts and prayers with you

[Trillo in reply to jabberwocky45]

You cant look too far forward, as you would just send yourself crazy, itll affect both of you. X

[jabberwocky45]

Thank you xx

[makeifer]

So sorry to hear. My husband also has PSP diagnosed two years ago, but symptomatic for at least 5 now that we know what it is. He is slowly getting worse-so horrible to see him become so dependant.

[Trillo in reply to makeifer]

Yes i know, its horrible, steals everything from you, and nothing can be done.

[kandk]

My sincere condolences to you and your family. My husband also has PSP and we have seen so many changes in the last 3 months. Hugs to you as you find your way on the next part of this journey.

💕 Kathy

[Trillo]

Thks kathy, i was the same looking at these dramatic chsnges , not easy.

[ladyalone]

I am so very sorry to hear of your devastating loss, you and your family are in my thought and prayers. Take care of you now. Ladyalone

[salem16]

Condolences to you and family. My husband is 65 hard to see him like this. Now on minced food and speech is going. Still walks with walker. A lot wheelchair too. Hard to tell him he can’t have as he chokes.