After a long battle with PSP...: Many... - PSP Association

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After a long battle with PSP...

jessybx19 profile image
27 Replies

Many emotions are still flowing through me.

Heaven gained an angel yesterday at 12:25pm yesterday Sunday, May 24th, 2015.

I want to thank everyone that has provided support, guided me with their wisdom and has answered any questions I ever had.

Caregivers my heart is with you. Your strength and patience is like no other. You are the real super heroes ♡♡♡

For those fighting this illness you are true warriors. My heart is also with you.

To the supporters, family and friends don't give up hope. Continue love, hug, talk and advocate for your loved ones. Though my dad's journey has come to an end I feel like my has just begun. Don't know what direction I am headed but this fight will forever be a part of my life.

In time I will be in complete peace with all that has transpired. For know I will continue to pray and cherish all the moments I shared with my dad.

RIP Daddy

Love you always💗

In solidarity,

Jessy

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jessybx19 profile image
jessybx19
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27 Replies
Lisen profile image
Lisen

Hi Jessy, I know what you are going through almost a year now for since I lost my dad. We all know they are on a better place but it's not making it easier to lose someone you love. My dad would have been 75years old tomorrow. Very tough day for my mum.

Take care

Lisen xx

Lieve profile image
Lieve

Dear Jessy - everyone here, carers, sufferers, relatives and friends have found a place in my heart, for always, and every passing touches every one of us. I am so sorry you have lost your dad, too soon and to this disease.

Sending you a warm hug & all my love

Lieve xxx

NannaB profile image
NannaB

Dear Jessy, I'm so sorry for your sad loss. As you say, many emotions must be flowing through you. You didn't want your dad to leave you but know he is now in a better place and free from all his suffering. I am very moved by your post.

My prayers are with you and your family and pray you will all feel at peace during the next few difficult weeks.

sending you a big hug.

X

jillannf6 profile image
jillannf6 in reply to NannaB

I agree with what nanna b has said

yr post moved me a lot

take care of ursrlf now- you owe it to yrself to do that

much love

hugs and xxxxx 2 you andn all your family

jill

monkeylaura profile image
monkeylaura

Hi Jessy

My dad died almost 4 years ago and it is like yesterday I still cry at the drop of a hat thinking about it and it certainly changed my life. At the same time my mum was showing the symptoms of PSP so caring for mum took up all our time. It does take time to work it all out and you get used to it rather than over it.

Take care of yourself.

love monkeylaura

nomansland profile image
nomansland in reply to monkeylaura

I totally agree with your comment,regards,Rollie

Yatton6- profile image
Yatton6-

After. 6 years of battling PSP my dear wife passed away 4 years ago. With this awful condition it was relief for hèr to go though I did not want her to. The realty of the situation was that she could not stay

MaddyS profile image
MaddyS

Dear Jessy. So sorry to hear about your dad. He will live in your heart forever.

Take care, love, maddy

PUTLAND profile image
PUTLAND

Hi Jessy, I'm so sorry for your sad loss. Please take comfort in the love and care you all gave him through this horrible disease. Thinking of you. Take care xx

nomansland profile image
nomansland

Jessy,words cannot express the feeling,.I know as Madeline left us april 4th...there are no words for what I feel but life goes on ,your Dad will look out for you from the place he is , free, from this horrible illness,love,Rollie

jillannf6 profile image
jillannf6 in reply to nomansland

HOI ROLLIE\

HOW GOES OT ITH YOU AT TEJ MOMENT/

lol JIll

jhugs and xx o you and your family

nomansland profile image
nomansland in reply to jillannf6

Hi Jill..I,m not too sure of words that would describe how I feel...lost,alone,adrift,I still wake up and feel the other side of the bed not realizing Madeline is no longer there,for all the work involved I would trade it in a heartbeat to have her back but I also know that she had gone much past the end of any humans rope in this life !!!!The other side is that my journey will soon lead to my destination and hopefully I will see Madeline again,love Rollie....do take care of your brave self !!!

nomansland profile image
nomansland in reply to jillannf6

Hi Jill,ok I guess,things don,t make much sense,sorry I was so late in answering,love Rollie

Heady profile image
Heady

Hi Jessy, losing your Dad to any disease is hard and with mixed emotions. Lost mine to Cancer 12 years ago. As someone has said, you get used to not having them around and the pain that is causes. We both have the added advantage, that our Dad's are now at peace. Away from their evil diseases.

The battle that PSP has left you to complete, is learning to live without your father. This, you can do and WILL do. The same way you coped with all the other fights, one day at a time! Take your time, grieve your way. There is no time span for grief, only you determine that!

Yes, you are right, this is the first day of the rest of your life. Make your Dad proud. Although reading your post, I know he will have gone to his peace already feeling that way!

Lots of love and hugs

Heady

dkt48 profile image
dkt48

Jessy honey your father is at peace finally and I pray that you find peace in the fact that he surely and truly loved his devoted daughter. my thoughts and prayers are with you.

ritak profile image
ritak

Dear Jessy,

It is with a heavy heart that we see our loved ones succumb to this terrible disease but looking at their suffering, it's just better for them to be free of the physical body. Your Dad will be with you in your heart and memories always..

Having lost my mum on 4th March this year after 8 years of her suffering PSP, My heart still hurts so much but I just feel relieved as she doesn't have to suffer anymore.

May your Dad's soul rest in peace,

Love

Rita

Dear Jessy,

Please accept my heartfelt condolences at the death of your dad. You are right to believe that thisfight will forever be a part of your life; may you draw courage and strength from it as I am certain your dad would wish.

Christopher.

hicval profile image
hicval

Dear Jessy, your kind words to the whole system generate gratitude and healing from your great loss. We lost our loved one on February 24 this year. I assure you your dad is shining his released love on you. I hope you feel him the way I feel Mihai, from a much better place now.

littlesupermum profile image
littlesupermum

Thinking of you x

nannygoon profile image
nannygoon

Dear Jessy, sorry for the loss of your Dad, although it is a relief that they are no longer suffering it still hurts so much. I lost my sister à month ago she was 81 suffered to 4/5 years,I am still feeling the loss but thinking of you take care.

jimandsharynp profile image
jimandsharynp

Jessy, Your caregiving days are NOT over!! Now it's time to care for yourself. Your dad is in a better place, at peace, and wishing the best for you. I'm sure you'll live the rest of your life as he would like. Thanks for being a contributor and please drop in and help when you can. People with your knowledge are needed here. Jimbo

laila123 profile image
laila123

i am so sad for your and i hope you find peace

Doglinton profile image
Doglinton

Sorry to hear of your loss. He sounds a very special person, and so do you !

My thoughts are with you.

love, Jean

jessybx19 profile image
jessybx19

I want to thank you all for your kind words and support. It had been a very emotional time for mom and I.

I have you all in my thoughts and prayers. As stated I will always contribute to this forum and if anyone has any questions please feel free to contact me.💜💜💜💜

In solidarity,

Jessy

jessybx19 profile image
jessybx19

Its been a little over three months. It has been a heartbreaking experience and now my mom is facing some health issues as well.

Thank you all once again for taking your time and responding.

In solidarity,

Jess

timinsuranceman profile image
timinsuranceman

God bless you. My father died from cancer in 1983 when I was a teenager, my mother also from cancer last year. Neither was elderly. I am 50 and have been dying from PSP for three years (although the symptoms were very obvious long before). It will get easier for you, even if that seems impossible now.

Love,

Tim

Cwolpe profile image
Cwolpe

Thank you.

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