Sad

[demlac]

Hubbys hip surgery went well but he has a touch of pneumonia he’s not well at all, the doctors have indicated he will be in hosp rehab 4-6 weeks.. Have a meeting tomorrow in regards to his swallow as it is almost completely gone can’t help but feel so so sad and glummie ( just have a bad feeling) it is indicated to me that after such a traumatic fall that this disease has a way of a aggressive progression. God I just don’t know what to do!!!

[raincitygirl]

I'm sorry for hubby's step-down, demlac.

Has he indicated his wishes re a feeding tube? If so, there isnt much for you to do? Let rehab do their best for him to get him as functional as possible. While he's in hospital and being counselled re feeding options he'll have a chance to reflect on what he wants.

Meanwhile, what about you? Can you catch up on sleep?

Hugs to you. XXX. Anne G.

[Tippyleaf]

Sorry to hear this. Hope he is comfortable and pain well managed. Important now for you to look after yourself so you are strong and ready for whatever is ahead

Sending love and hugs

Tippy. Xxxx

[SewBears]

Dear Demlac, I’ve been off line for awhile but I haven’t stopped thinking of you and your family. In a previous post I mentioned something about decision points. It sounds like your husband’s disease has progressed to the point from not knowing what to do, to being forced to make some really tough decisions. I feel your pain. I really do! You said you aren’t very strong but please cut yourself some slack. No one expects you to know what to do. Every situation is unique. Be kind to yourself. Know matter what the outcome, you will make the right choices for you and for your spouse and family. Take some selfie’s now while you still can. Even if they aren’t pretty. The photos will help you down the road to remember why certain decisions had to be made. I hope this will help you to heal over time. I’m so sorry! Xoxoxo

[Hiking13]

I agree with everything that has been said here try to look after yourself (I can’t believe I just said that as I have been rubbish at doing this over the last few weeks) The decisions are so difficult and I think it’s important to take your time at any meeting you have in hospital regarding the difficult decisions and if you don’t understand something make them go over it again, that’s what I do and I have had some very difficult meetings about Steve and I know I have taken a lot of time to go over things several times but that way I come out of the meetings knowing that I have fully understood all options and not been rushed into making a decision that let’s face it non of us ever want to have to make for our loved ones. I will be thinking of you Love Sarahxx

[Dadshelper]

If you husband made his wishes known regarding a PEG etc now is the time to make sure the doctors know. When dad had to have surgery for a 100% bowel blockage I thought that would be the tipping point but to my amazement he rallied and bounced back to near pre-surgery baseline after spending 2 weeks in the hospital.

Ron

[Javan]

My old bag had a peg fitted three years ago and it has been the best thing for her. It has given her a good life and less medical intervention.Use your bossy skills to keep your master on the right track and enjoying life to the full. Do not give up.

[Katiebow]

My husband had a partial hip replacement after a fall, he was 64 at the time. He seemed very out of it for a few days which turned out to be a UTI due to being catheterised. Once they cleared the infection he became more his new normal self and lived for a further 2yrs. It's a tough journey and especially for someone so young.

Sending a big hug

Love Kate xxx

[LuisRodicioRodicio]

Hi demlac!

Our experience with PSP-RS:

A serious fall with serious consequences (hospitalization, surgical intervention, strong medication, etc.) as well as a serious illness (pneumonia, severe flu, etc.) are typical situations that can trigger a fatal process. It is not uncommon for the PSP patient to overcome these types of situations - but these situations once overcome are often accompanied by some increase in the PSP symptoms and a decrease in the quality of life.

Hugs and luck.

Luis