After reading someone else's post about this medication being used in clinical trials for PSP and other neuro-degenerative diseases and seeing that it had already been cleared by the FDA (we are in the U.S.) for a cancer treatment, I have asked our neurologist to prescribe it for my husband as an off label treatment. Physicians in our country can do that. I sent this correspondence along with a copy of the article about the study (in Human Molecular Genetics magazine, May 10, 2013, by Hebron, Lonskaya and Moussa) to the physician by mail so I can't expect a reply for at least a week and maybe longer. If the drug works it is NOT a cure. We are hoping for more physical control in his limbs. Thanks to whoever posted that link. I will let everyone know what, if anything, happens.