Hi, I need help! S will NOT drink anything. It's always been a struggle, to get fluids down him, but now I feel I am getting to crisis point. Because he now has all his pills crushed, there isn't the regular sips of water, I doubt if he drinks a cup of fluid a day. For the past few years, I have been telling any professional, that we come across, that he isn't taking enough liquid. They have a chat with him, he nods in agreement, then totally ignores everyone !
We are starting to get problems now, constipation, skin very dry, his urine is very strong, therefore he starting to get sore. Who knows what is going on behind the scenes.
I can't keep on nagging him, well I can and do!!! But that's no life for either of us. He does struggle a bit with swallowing, but I don't think it's enough to be the cause. I have got a straw, a nosey cup. The hospice have just given me some thickener, but I don't think that will work. I keep different drinks, lined up beside him, all day, but bar pouring it down his throat, I don't know what else to do. At this rate, he will have to have a peg fitted, just so we can get fluids into to him.
His actual swallowing seems to be OK, I haven't had to change his diet, but I don't think he knows what to do, when eating or drinking, food or drink goes into his mouth and just says there. Once I tell him what to do, he can chew and swallow fine. I give him loads of food with liquids, just to get some Into him, fruit, veg, milk on porridge, ice cream and custard etc. Every main meal will have sauce or gravy.
Please, what else can I do???????????
Lots of love