My husband, 63 yrs, diagnosed two and a half years ago has chosen medically assisted death and will exercise this right soon. The only good that will come out of this tragedy are those in need of organ transplants. He has decided to be a donor and brain tissue will be sent to CurePSP at the Mayo Brain Research Centre in Florida. I have much respect for the BC Transplant team in Vancouver and to his doctors for their kindness.
Family and friends and I are very supportive of his decision as he is locked in a stiff and uncooperative body. He is experiencing more back and shoulder pain despite massage and physio treatments. I am shifting from the caregiver full time to pieces of the day where I can just be with him for the next few weeks.
This forum has been helpful. I haven’t posted much but do read the posts early morning when I can no longer sleep. Thanks to those who share their experiences.