We ( hats off to my sister for it) managed to make modifications for dad in the house to make sure the falls were avoided.. and many other things.. my dad wasn't the easiest PSP patient to handle.. the disease makes them unmanageable but his nature from the beginning was the one who liked to defy everything and absolutely fearless
1. Initially due to the rocket motion that PSP patients suffer from (to suddenly get up and then lose balance), we had bought a chair with armrests and put a wooden plank on the arm rests with locks.. so it was not possible for him to get up without someone being around.. this also served well for serving him food as he used to eat on his own during that phase.
2. we had put railings for him to hold on to in the corridor and in the bathrooms. We noticed that while walking if he had something to hold on to then it would prevent the fall.
3. All edges and corners in the house had been covered with foam. So that the house didn't look shabby we covered the foam lines with a black leather and stuck them with glue. this ensured that even if he fell the chances he would get cut badly was avoided. we had also put foam on the wall where his chair was kept so that if he were to hit the head to the wall, it wouldn't hurt as bad. So also in the bathroom there was foam on the commode chair and on the wall where was a possibility to hit his head
4. the bed as in the picture was specially made for him to avoid falls. initially we just made it high enough for him to not fall off the bed. and doors with locks as he insisted on getting up and leaving the bed
on his own. later he always tried to take keys to open the locks on his own so that he could again get up on his own so we had to make sure the keys weren't within his reach. So once he tried to jump over the high walls and had a bad fall .. he got up on the bed and would have almost hit in his hand on the fan above. hence we sealed up the top. He was the lion in the cage and hence he did become aggressive and used to try and hurt mum when he could.
5. When he was hospitalized and a catheter was inserted, he pulled off the catheter and bled badly. the hospital guys then tied him up. It was horrible to see him in that state hence we decided to buy Dog neck cones and put it in his hand. that avoided the fact that he could pull off anything and also he would not be tied up
6. We did not use the Foley catheters, instead every 8 hours the lose catheters were used that ensured there was no urine infections.
7. Last, of course, the anti slip mats in the bathroom and just outside the bathroom helped a lot too
From the bottom of my heart, I pray to God/universe/nature/whatever that could be, to give strength to all PSP patients and carers in the world and to all patients/carers of all terrible diseases.
My dad was a warrior who fought this lost battle till his last breath! he taught us not to be weak and cry over silly things in life!
PS. It allows me to add only one image. The image of the bed is in my other post anyone in Mumbai.