Hi all, my dad had a visit from the Macmillan nurse yesterday. In conversation, it came up about the battle we'd had with Staffordshire CCG to get CHC after dad's fast track application. I told her it was unlawfully refused, and we got it overturned. She was amazed. She's having this experience again and again, and had no idea that fast track means it can't be refused. She hadn't heard about Beacon either, so I soon put her straight on that one! Hopefully more people can be helped now. It never fails to amaze me how badly the system is run. On another note, we were told by the CHC that my dad could ONLY get 4 visits per day and absolutely nothing else would be paid for. The Macmillan nurse applied yesterday on dad's behalf for weekly night sits and was approved straight away. It's no wonder people get confused!
I'm still having a right battle to get the "Just in case" meds in place for dad. I've been asking now for 4 weeks since he came home. The neuro nurse said the GP should do it; the GP said the Macmillan nurse should do it and the Macmillan nurse said it's the GP's responsibility. So we're back to square one. Now waiting for the hospice consultant to come out and assess him. I can't believe how long everything takes - surely there should be some urgency in end of life care?!!