Does anyone else with PSP have this problem?
My mother suffers terribly and it has become quite a big issue for all of us as she gets very distressed. She has to strip off and have a fan on her and then after a short while she wants jumpers on again and then it all starts again. Sometimes she has 3 of us fussing around her with fans, cold water sprays, helping her with her clothes etc. She gets really frustrated if we do the wrong thing and cries out/shouts. Its just awful.
She has been prescribed pill after pill but nothing seems to make a difference. I'm not even sure if this is part of PSP, but if it is, none of the doctors are quite sure what, if anything will help.
Does anyone have any experience or advice?