I'm so sorry Althea. It sounds like you need a minute to yourself to process all of this.....If he's too hard to understand , NannaB taught me this one....have him hold his thumb up for yes or down for no....And remember we're all hear for you
Thank you for your precious reply. Being part of this group and knowing that I am not alone means the world to me. Yes, I remember NannaB saying that in one of her posts. She always has wonderful advice.
Alas.... Barry's understanding of holding thumbs up or down and reading words on a board is very poor. I too have a problem with my hearing which makes matters worse.
Yes it's never just one thing is it...B would'nt really do the thumbs up down thing till late last year.....I had to constantly re ask....and then not being able to hear well doesn't make matters easier,
Hi althea. A thumbs up after several tries is all we have now. Long past reading boards or any other such things. Gers eyes spend most of their time looking upwards now.
Hi Althea. My husband is no longer able to do thumbs up/down so I give him my hand to squeeze when the answer is yes and he simply does not squeeze if his answer is no. It is important only to use closed questions that need only to be replied by yes or no and only one question at a time. It cuts down a lot of the potential frustration. Hope this helps. Look after yourself.
Barry is at home. 5 weeks ago I employed a Carer. Her name is Voyo, she has a wonderful disposition, she is physically very strong and she 30 years old. I am BLESSEd. As you know this becomes a two man job with all the lifting,feeding,shower, toilet etc!
Barry has been in hospital 4 times in the past 10 months and is " Gat vol" a South African expression for " he has had enough " I have to respect his wishes but ..... I'm concerned about the future with complications that may need hospitalization.
Althea,I read these comments and I see myself just 6 weeks ago.The "time warp" comment is so descriptive of the condition you are in.It is a feeling of constant waiting-but waiting for what? The unknown.
Althea,my beloved Don passed away on July 12.He was in rehab trying to get strength back to come home when he died of a heart attack in the middle of the night (in the middle of a breathing treatment).I have a hard time wrapping my mind around that still.He had no heart problems.I know God works in mysterious ways and that is the only way I can reconcile his death in my mind.We would have celebrated 54 yrs of marriage tomorrow.
So sorry to hear that, PSP is so unpredictable, I hate these stages, were something happens, make you feel so sad, especially when you can't understand what they are trying to say. Last night when I went into the bedroom, George was sleeping had made such a strange noise I thought he was passing away xxxxx
Dear Yvonne, how we all live in fear of the worst happening is so sad. When I think of the stages Barry might still go through I wonder if he wouldn't be better off. Sounds callous but I love him too much to see him suffer.But on the other hand as my grandmother always used to say ... life is sweet, we all hang on to it.
Hi you mentioned "Time Warp" I have been having similar feelings that I cant explain its very strange feeling is it a time warp the feeling of time?? Does anyone else feel this strange way? Time is passing by.
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