I can't believe it is nearly 2 years since I have posted anything or visited this forum.
The last year in particular has been very hard and at the end of each day I just had the energy to go to bed. Very sadly at the end of last year my husband lost his 5 year battle with PSP. We managed to care for him at home until the last 6 weeks of his life, when the care he needed was beyond that that we were able to provide at home.
The staff of the care home he went into were brilliant, and whilst it wasn't what we had wanted, it did allow me to spend more time with him without being involved in all the care he was requiring. I feel he and I had "quality time" together albeit very difficult in the end stage of PSP. He now is at peace.
I hope to be able to join in the various discussions and perhaps catch up with old friends.
Love to all of you