My father's last days: He was doing well and... - PSP Association

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My father's last days

Judierhinson profile image
7 Replies

He was doing well and hospice decided to give him seraquil. They knew what this would do to a 85 year old. Then they left the pack to be administered by his horrible wife he died 3 days later. They starved him and thirst him to death . Then the death trio. I will never let hospice in my life again. They kill the patient

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Judierhinson profile image
Judierhinson
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7 Replies
Duffers profile image
Duffers

So sorry to hear this. Unfortunately I can't relate to any of what you're saying as I have nothing but praise for our local hospice. God bless. Marie

Judierhinson profile image
Judierhinson in reply to Duffers

well I'm sorry to say that hospice came in and he was dead a short time after that hospice was not there the night he died he was given all the drugs by his wife I don't think she was qualified to do this and that's what bothers me why would Hospice let her kill my father at least Kevorkian would have had a little thought about what he done he would go ahead let him die and not make him sit there and suffer with no food or water I mean she would she said she was putting ice cubes in his mouth my father couldn't hold it ice cube in his mouth he wouldn't he would have choked to death why didn't you put a sponge in his mouth why did she just kill him they let my daddy's wife kill him he had enough money to be able to pay for a nurse 24/7 why was she trying to steal his money

honjen43 profile image
honjen43

Am so sorry you have lost your dad. He obviously meant a lot to you.

You have only written this one post. What ailed your dad? Was he diagnosed with dementia? Most of us here care for a loved one with PSP or CBD. Both illnesses can change the patient's personality and can also cause some sort of dementia.

If your dad has been diagnosed with either PSP or CBD or Parkinsons disease, we all understand what that is like.

If he had a different mental illness, we are not so familiar with its treatment. You may need to go back to the Hospice that were looking after him and ask their doctor about your dad's treatment. I would understand if you do not want to do that.

If you think any of us can help you find closure, come back to us here. Or you can private message me if you prefer. I have no medical qualification, just concern for you at such a difficult time.

I hope you can find peace soon and some happier memories of your dad and you together.

Hugs

Jen xxx

Judierhinson profile image
Judierhinson in reply to honjen43

I'm still having a hard time and I miss my dad every single day it's brought my has brought our family together so so much more than I ever thought of PSP hurts the brain I know that what is it it's not the neurons it's the gosh I can't remember the name of it a lot of days at the end were really where he forgot a lot of things he couldn't read I couldn't watch TV he couldn't do a lot of things I mean and I know that somebody tried to get him to sign some papers and that's what bothers me the most is that I don't think he was coherent enough to be able to sign those papers and that bothers me I'm trying to find my closure right now but there's a lot of answers to a lot of things I need to find out first and what I'm was wondering was his brain still functioning 2 months before he died

honjen43 profile image
honjen43 in reply to Judierhinson

My husband was asked to sign documents just before he died. They were Power of Attorney for finance. Years ago we had put a POA ready for use if either of us were unable to think for ourselves. This paper was useless as the doctor in charge said my love could still make conscious decisions so would not sign the medical form. Same Dr suggested he had another 6 months but was definitely not used to dealing with CBD/PSP.

So I understand why you are concerned. In my view if you are correct in what you say, things do not seem to have happened in a way I have seen.You need to gather your family together, write down your concerns and compare them together, on a united rational front.

I do not think your dad would have much brain capacity left. My husband lost similar abilities inside 4-6 weeks and was sleeping most of the time. His appetite dwindled too, and he was eating only jelly and icecream in the last 2 weeks. When he could not drink I swabbed his mouth but he did not like it and bit hard on the swab so it was hard to remove. Ice chips would be another way to get some lubrication into the mouth while he could still swallow.

Your anger is eating you up! You must get answers. Gather you family together and write down your concerns. See if you all have the same concerns! Then go to the Dr and Hospice and request they answer those concerns.

I hope you can find closure. Then you can remember the loving dad as he was before PSP.

Hugs

Jen xxx

enjoysalud profile image
enjoysalud

I am sorry for your loss. I am the mother of a 55 year old that I lost to PSP. He died on May 4, 2017. He was under hospice here in the United States (California). I miss him terribly.

Sometimes we want to keep our loved one alive no matter the circumstances and we forget how much our loved one is suffering or that when the body organs start to close down, food and water can create much more discomfort.

When death takes a loved one, I find it becomes so much easier to look where to cast blame. Was it me who did not do enough? Was it the doctor who only saw the symptoms and missed the person? Was it hospice?

Maybe since ALL living things....flowers, trees, pets, children, parents, family...live and eventually die, it was time.

We all have our wishes and beliefs as to HOW death should be, how life should end.... often the reality is very different.

easterncedar profile image
easterncedar

I am so very sorry. Losing a loved father is terrible under any circumstance. Wishing you peace, Easterncedar

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