Hospital bed

i have found and purchased a hospital bed, but I'm having a tough time mentally with it. It just bring the whole PSP thing to reality . He is falling daily and his bladder control is getting worse, a bit of a decline this last two weeks.

Dee in BC

[easterncedar]

Hi, Dee. Yes, I do know something like how you feel. Giving up the regular bed was made slightly easier for us after my guy fell and tore the footboard off - - and I did find I could sleep with him in the hospital bed, at least for some of the night. Hugs, Ec

[Zeberdee]

Hi Dee know exactly what you mean. My hubby is in a hospital bed with an airflow mattress. He is now unable to bear his weight and doubly incontinent and totally bed bound. Can only be moved by using an electric hoist. Not safe to put him in a chair as he tends to lean to his right and also slips down. Unfortunately there is no light at the end of the PSP tunnel. Jx

[jillannf6 in reply to Zeberdee]

I AGREE`I KNOW WHERE U R COMING

ROM. DEER E AND ZEDBERFDEE

[doglington]

I know. Its really hard constantly adjusting downwards !

Jean x

[Satt2015]

Hi Dee

I totally get where you coming from but before you know it this new bed will become the norm! Just try and go with it, at the end of the day, it WILL help!! Thinking of you both x

[Katiebow]

Couldn't manage without a hospital bed but miss sharing a bedwith Ben. I often get into his bedin the morning lay along side him before the carers come in and he enjoys that physical contact and squeezes me hard, it seems the only time it seems more husband and wife rather than patient and carer.

Sending all my love

Kate xx

[Cuttercat in reply to Katiebow]

Me too. Small bed but a little while is good

[Julieandrog]

Hi

The journey is individual , but try not to look at what you are losing just think this will make life easier, you get used to sleeping alone, sad but the truth.

Julie

[Duffers]

Sorry to hear that Dee. Just a question. Why did you have to buy a hospital bed?

The other thing, pads and convenes are great and do allow life to be less stressful and, for the individual, less embarrassing in company.

Falling. Maybe a standing hoist.

Good luck. Marie

[Cuttercat]

Charles likes his bed. I sleep next to him on a sofa bed. Sad but ok for now

Cuttercat

[Tippyleaf]

I find the hospital bed a huge help for getting hubby in and out sitting him up for a drink etc. And of course so easy for a quick bed change on the middle of the night! The novelty however has not yet worn off so 3 months on he spends his night playing with the controls - the bed is like a fair ground ride. I find him head down or virtually in a standing position like a rocket about to launch!! It has become our new norm but I am hoping the novelty of the control will soon wear off!!

Xxxxx

[westcoastgirl]

Hi Dee, if you don't mind me asking - when you say Dee in BC, where do you mean BC? We live in Canada and my mum was recently diagnosed but there is such little support here. Thank you

[Hidden in reply to westcoastgirl]

Hi,sorry to see you on this site but you will get lots virtual hugs and support here,tons of information. We live in Chilliwack originally from langley.

Dee in BC

[westcoastgirl in reply to Hidden]

Thanks! Sounds weird but it is nice to hear another BC family out there. We live on the island and it feels so isolating dealing with such a rare disease

[charlieford]

Some of the lifestyle adjustments can be very difficult in the beginning. I really hated our hospital bed when we first got it, and even more i hated the mobile hoist and ceiling track. It looked so out of place in our home but over time we just got used to it and i don't even think about it now because the health and safety benefits far outweight the negatives. My only advice is that whatever changes you have to make, give yourself time for the adjustment. Knowing that you can adjust to those changes will give you confidence to make any subsequent changes in the future.