Wet bed

My husband peed the bed for the first time last night, I’m hoping it is a one time thing.

[Dance1955]

Hi Penny the only time my husband wets is if he has a UTI Just saying hope you’re ok x

[Martina_MP]

That is something that tends to recur. Even if it just happens now and then, changing sheets can be a lot of work, which you can often avoid if you get him some nighttime disposable incontinence underwear (such as Depends) and waterproof absorbent washable bed pads (you can search for them on Amazon).

Use the bed pad on top of the fitted sheet. They are also strong enough to be used as ‘draw sheets’ to help a less mobile person get centered on the bed.

They also make smaller sizes for use for seats and wheelchairs if incontinence becomes an ongoing problem.

[Hidden in reply to Martina_MP]

Thanks I’ll check into them.

[Martina_MP in reply to Hidden]

Penny if your husband is on hospice then they typically will supply incontinence products including disposable bed underpads. Ask your nurse what solutions she has for you. The one we work with gave us diapers though, not the ‘pull-up’ kind so we still buy our own but see what they can give you.

[Hidden in reply to Martina_MP]

He is on palliative care now.

[NannaB]

I hope it is a one off but my husband became incontinent day & night eventually. It wasn’t that he didn’t know he wanted to go, he just couldn’t get to the toilet on time. He would worry so much that he’d rather spend most of the night in the toilet rather than wet the bed. Martina had a good suggestion which I used for a while until I was told about convenes which totally changed our lives. They are like condoms with the end fixed to a tube going into a bag attached to the leg so all pee is collected and can be emptied via a tap on the bag. He no longer got up at night and we could go anywhere without worrying. Hopefully your husband won’t have need of them but they were brilliant for us. XxxX

[Hidden in reply to NannaB]

My husband can’t walk he is in a wheelchair. That sounds great because then we could get out more.

[NannaB in reply to Hidden]

Yes you can. We went out regularly as my husband loved being outside. Others have mentioned make sure your husband is measured for a correct fit. I asked my dad’s GP for some for him as my husband’s were so successful and a box was delivered to his house with no instructions and the wrong size. The district nurse measured my husband and showed me how to put it on him. Something I can laugh about now.... after getting the convenes, the first time we went out for the day to friends and were there for several hours, I discreetly emptied the bag into a bottle and disposed of the contents into their toilet. When we got home I transferred my husband into his chair and left him while I made tea. I could hear him doing his funny little laugh and when I went to see him, there was water running across the parquet flooring and soaking up the curtain. I had forgotten to close the tap after emptying the bag. He and the chair was dry but water goes a long way on a solid floor 🥺XxxX

[doglington in reply to NannaB]

Yes. We all made that mistake Bev !The incontinence nurse measured him and showed me how to do it. xx

[Poppypolo in reply to NannaB]

I can just see it happening what a laugh, thinking about it i would have cried at the time

[Poppypolo in reply to NannaB]

An answer to a prayer, convenes no more getting up at night, once you get the right fit and tape to go with them no more accidents.

[doglington]

My experience was the same as nannaB. Reducing the anxiety is a life changer . Sooner or later incontinence becomes an issue - the " new normal " - someone here suggested disposable pads used for dogs in bed to save on washing . xx

[Caro2132]

The convenes were the best, and we used pads as well. Make sure you get the right size so the condom part doesn’t slip off.

[AnneandChris]

I couldn't agree more. Conveens were absolutely wonderful. The knack is getting the right length of tube. My husband was tall so the standard length wasn't long enough for him and they kept coming off. Good luck.

[key4u]

Continence Service via NHS supplied free pads from ID Direct. We also bought puppy puds from B&M to catch spillage to save the sheets. Also the the hospital bed supplied by Social Work had a water proof mattress. We also bought many extra sets of PJs.

[daddyt]

I haven't wet the bed, but I have wet myself a few times. The Depends Shields were good for a while, but on those occasions they were not. As a precaution now, I wear a Depends pull-up at night... been lucky so far. I like the idea of the condom catheter... might want to jerry-rig an overflow bag for those two coffee mornings or extended outings😉

Tim

[roseopsp in reply to daddyt]

For my wife, Depends are insufficient for all her nighttime urine. So I use the heavier (Hospice-supplied) diaper and supplement that by inserting a bladder pad as well. That holds enough to usually prevent accidents, but I also use bed pads -- both under and on top of the fitted sheet.

Oly

[Hidden in reply to daddyt]

Tim thanks for answering and being here for us .

[AnneandChris in reply to daddyt]

Tim, the Night bag has a large capacity whilst the day bags are smaller but have a valve so can be emptied into a suitable recepticle then disposed down the loo. They really were so useful particularly once Chris could no longer walk safely.I hope this is of some help, keep on keeping on.

Anne x

[Monapapa]

My dad had the same issue almost year ago. Now he is completely on bed with cathedral.Penny- This disease is so hard. I think its related to muscle control and they are not able to control the muscle.

[MARKJ9]

Hi Penny, unfortunately incontinence is related to the brain being unable to control the muscle that acts as a valve at the exit of the bladder. For my dad, this happened even before he was diagnosed with PSP. He later went into a state where the valve was shut and prevented urine flow. He started accumulating fluid. They had to use a catheter to drain out urine. It was after this that a neurologist diagnosed PSP. Our brain controls swallowing, movement of food through the intestine (peristalsis). As the communication between the brain and the muscles deteriorate all the functions will deteriorate. People lose sense of taste for the same reason - breakdown of signals between the taste buds and the brain. With the current medications in the market, for some people the decline can be slowed down. It didn't work for my dad. It is good that you are asking these questions here. We are able to deal better with compassion with those we are taking care of when we know more about the condition.

[Hidden in reply to MARKJ9]

Thank you for your answer. It is so hard when I take him to the bathroom and he stands there for 5 minutes to pee.