Liz has all but stopped peeing. She went normally at 1330 yesterday and drank about 2.5 litres before bed. No peeing at bedtime or in the night, nor this morning.
At 1230 today she passed about 300ml of dark urine. It did not have a particularly strong odour and then nothing and the has had a further 2.6 litres of fluids today.
We have spoken to the GP and will do kidney function blood tests tomorrow. He said do't start worrying just yet.
Liz does not need a catheter yet.
Has anyone seen this sort of thing?
Thanks
Kevin
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Kevin_1
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Mum gets uti quite a lot. In hospital if they don't pass urine for 24 hours a catheter is put in if bladder scan shows bladder is not emptying. Liz has drunk an awful lot of liquid (wish Mum would drink that much) with little output. Mums urine never has a strong odour when she has a uti, I can tell in a change in her behaviour and physical ability. Hers go cloudy more than dark, everyone is different though.
How does Liz appear in herself? Any raised temperature or feeling dodgy?
Is liz still continent as such or has she got to having to wear pads etc?
Do you have a contact at hospice you can contact for advice or District Nurse?
Great news more has been passed and tested negative.
Tena do a kit called u test that can be put into a pad to test for infections like the dip sticks. If you need them in future as we had trouble getting a sample from mum as she mainly goes in pad now and not commode. District nurse bought the kit round.
Still not a great amount passed on amount drunk so I'd still keep an eye on output.
I'm lucky if I get Mum to drink a litre a day and panic if only one toilet trip doesn't have much output as worry about uti all the time, along with everything else!
Kevin, 5 litres is a lot and only passed 300mls. Is Liz in discomfort in her abdomen, does she feel like she wants to pass urine. My advice would be that if Liz starts with tummy pains she may be in retention and they may need to pass a catheter just to empty her bladder
I hardly dare say this but now your situation is resolved/resolving? I'd like to say I wish Jon pee'd less. He's taken to doing it all over the bathroom floor or in the wash basin. And still laughing about it.
This evening when he called me to assist him he said our son (nearly 40 now) followed me upstairs aged about 5. Said he often sees him. Felt really spooky asking him if he was beside me now! Answer was No now that I'd told him the time which brought him back to reality it seems. Strange times.
You're not alone. Four times last night, five the night before. Jon can't lift his legs back into bed and mostly cant stand from sitting to get out of bed. I help him out, go back to bed while he takes 10 minutes to pee (with more or less accuracy) and help him back in.
But at least he's lovely about it. Always apologetic.
He's started day care one day a week at a lovely day hospice so times are changing. Last time I was there it was a riot. A Buddhist nun, a regular visitor, was running a quiz. Men v women and it got completely out of hand. The men were losing so heavily that the nun tried to feed them the answers, so the women were vocalising their protests loudly. But nuns don't cheat do they? So they must have been mistaken. Every so often when it got too riotous, the nurse keeping the scores would ring the bell and call for order. I couldn't stop laughing.
So lots of laughter still (except when faced by the poo/pee clear-up)
Hope Liz enjoys hearing this. I loved hearing about her visitors.
I think you are right Kevin, this illness does something to how they produce urine, Rog has the most odd diuresis at times, going from maple syrup to maidens water! He has had a catheter in for a while, I won't let the DNs near him to change it after the last fiasco, touch wood it has made things managable. Rog has a small beer each night in a sippy cup! That seems to work a treat.
Have a good day I think we all all to see some rain.
Next hospice nurse visit we will be discussing catheters I guess. Get ahead of the game.
Liz will hate this! Ugh! I don't blame her. PSP takes everything away bit by bit.
I've been increasing my beer intake steadily with little effect though...
Maybe it might work better if I give Liz some?
Kevin
xx
My husband went through this about 3 months ago, he was drinking a good amount of fluids but woul not pee for 18 hours .he did get back to some what normal , maybe the other way more so (unable to hold his pee).as long as I keep him on a schedule he dose pretty good .I did ask the doc how long do I wait before seeing a doctor if this happens again, he said 4 hours.. Like that's going to happen, it seems like thing happen on the weekend or in the middle of the night in our house.Do hope it works it's self out , it has to be un comfortable .
The Doctor at the Neurology hospital said it was nothing to worry about, "Probably just one of those things." He said that if it had gone on any longer we should be looking at Cathetarisation. Our GP said if there is no discomfort and there wasn't, then 4-5 five days would be worrying. Hospice nurse says 36 hours max. Shoot one tired GP?
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