My wife had again an assessment for continuing healthcare from the NHS. I was told that as of October 2014 there is a new system in place called 'personal healthcare budget'. This is not the same as the personal budget for social care and support. Have a look at the following website: gov.uk/government/uploads/s...
This basically means that whoever is eligible for continuing healthcare from the NHS can request for a personal healthcare budget which is not means tested. Apparently it can vary a bit from county council to county council how much money can be made available, but it is a significant improvement over the means tested social care and support budget.
As the PSPA has recommended everybody with a disorder such as CBD, PSP, Parkinson's, etc. should apply for an assessment for continuing care. Even if you do not yet qualify, it means you are in the system and when the need comes, matters move along much quicker. My wife unfortunately now qualifies for a full assessment and when she is considered eligible we are going to make use of the new option.
You do not need to get the GP involved, get in touch with your local community services and take it from there.
This new option is only available at the moment in England.