Well we have just had a CHC Assessment - done by an agency on behalf of the Commissioners Board - The outcome is for L to go forward for a full review - L already receives CHC.
We made full notes of L's illness and needs before the assessment handed them to assessors. They were very pleased. It means they have all of the basic information and the interview is somewhat shorter, but crucially the proper CHC assessment is scored and doing this means that they have the information to get the points you need.
Think of everything that needs attention and list them as one word. Now go back and use those as headings and describe the persons needs is a few short sentences.
Add a section on who lives in the house and who is the carer and what thier needs are. It is OK to say if you are struggling to cope.
I've done a little proforma to help folk who want to go down this route.
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It is may have irrelevant stuff in. Just delete those. I may be missing some of your areas. Just add them.
Ask for it to be put on file as a report and not a letter. This is important. It means it is easy to find when another clinician is looking at your case.
It does not matter if you don't do this... It just might help.
The other useful thing to give them are the most recent Neurology and Urology or other specialist letter to the G.P.
Good luck again.
Kevin
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In Wales CHC is reassessed 6 months after initial provision then annually. The first 6 month assessment was iffy but M tilted the decision by having a choking fit, social worker and assessor upped a couple of scores we retained it, she has now had an assessment now she is in nursing home again little difficulty. I agree with Kevin keep a diary of what is required for your dad care and nursing paint the picture as for a bad day not a normal day.
Just in case you don't know. The law states that carers should play a full and active part in the assessment. Using your own completed Decision Support Tool is encouraged and if you disagree with their scoring argue the point. If they overrule you it is important to ask them to note your disagreement. That way the decision making panel can see you disagreed and they will perhaps scrutinise that part more closely. It also helps if you have to appeal.
Record their scoring too.
Finally a Social Worker should be at the assessment. Their role is to assess whether or not the care required falls within or without the Social Services 'Legal Limit' of Care. This is the dividing line between the NHS and Social Services care. If the risks and care needs are beyond their legal limit then the NHS are duty bound to pick up the care and the funding.
I ask the social worker at the beginning if they are going to assess the legal limit for Soc. Serv. care and at the end I ask them their decision. They don't like that, but remember the Social Services file on the person being assessed is open for you to see everything if you are given permission by your husband or if the LPA for Health and Welfare is active.
I suspect it was some notes about downloading the Decision Support Tool and completing it yourself making sure to stay evidenced based.
e.g." Simon is at risk of impulsive action and falls. He has fallen x times in the last month."
I would imagine it would have said review and add to it over a couple of day's as things will pop up in your mind.
Complete it as if no care is in place this is really important. The Decision Support Tool is about looking at someone's needs not the ones not already met.
Don't forget all of those needs which you meet as a carer. The need for toileting, administering medication preparing food, responding to needs, monitoring health situation and involving GP or nurses as necessary and keeping an eye on him for his safety.
Make sure your own needs are represented, time off from caring, stress, level of coping...
Make a list of all professionals involved with contact details and give it to the assessors. They are obliged to gather evidence from all of them.
Finally remember risks would be those that he would have if you were not there to manage them.
Thank you so much for taking the time to respond to me. They have sent me to support tool and although I am pretty good with forms this one is really 'scarey'. Thanks again AliBee
They look a little complicated at first. Simply all they require is for you to write your evidence. Don 't minimise! Evidence is merely factual statements. "Peter falls if he is left untended and tries to walk. This happened twice this month. I now need to keep close observation of him because of his impulsivity."
Then look down the the scoring scale and get the best match to your evidence.
Did they give you the part which says how to complete it? If not you will find that on the DST link I gave you above.
This will give you everything you need to know. The first three links in the article especially.
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Who qualifies for continuing health care (CHC). 
Palliative Care, (Continued).
continuing care
Continuing Care
