I am new

[Royw]

Awaiting a peg insertion and worried because I cannot lay flat which causes me to have breathing problems. Has any body had the same worry?

Roy

[easterncedar]

Hi, Roy. I'm sorry to say I don't know anything about this; I hope someone who does chimes in soon, but I didn't want to leave you utterly unanswered any longer. How long, may I ask, since your diagnosis? Good luck with the PEG. Best wishes, Easterncedar

[Royw in reply to easterncedar]

Thanks for my first reply, greatly appreciated. I was diagnosed with MND last September when my breathing and energy levels started to decline. Now I can't lay flat without breathing support and my pending peg proceedure gets me wondering how can I have this done. Prayer, time and the surgeon should know.

[easterncedar in reply to Royw]

For what it is worth, the PEG procedure is really very minor surgery. My former father-in-law had it after he had throat cancer and he was having breathing troubles, too. I'm sure you are right and the surgeon will be prepared and know what to do for you.

MND is a hard diagnosis. I am sorry you are having to cope with that, but glad you found this community. It's a good group of supportive people. It has saved my sanity and let me carry on taking care of my sweetheart, who has psp. Welcome. Ec

[1RobK]

Hi Roy,

My mom had a peg installed nov 8th, she didn't notice a breathing problem associated with it.

However she started developing a rapid breathing (panting) that comes and goes just before the peg.

[abirke]

They will anesthetize you to your needs when inserting the tube.... Otherwise you will not need to lay flat when receiving nutrient...Infact I think you need to be at a 30* angle when taking a meal

[Royw in reply to abirke]

Thanks, that's good news

[Valbri]

Once my husband had the peg in place he was kept at a 45o angle. Only when he was being changed was he flat.

[Royw]

Thank you all most encouraging comments