I am a new member

[Bpgail]

I am a 65year old woman with psp. I live in France and I need people to write to.

[easterncedar]

Hello! This site is a good place to find people who care and who understand something of what you are going through. You aren't alone. There are a few people here who have psp, although most of the writers are family and caregivers. You can write to people here generally or address a message specifically to one person. I am sorry you have to join us, but you are in good company. Where in France are you? There are others on this site who are in France, too. I am in the US. My sweetheart was diagnosed at 65, too. I'll be glad to help you if I can.

Love and peace, Easterncedar

[Yvonneandgeorge in reply to easterncedar]

Hi my husband has PSP and welcome to this site, everyone is lovely, and it is so nice to read the posts. How long have you had PSP? My husband was diagnosed last year in May in Cyprus while we were on holiday, then when we came home to London, he was diagnosed again in January, all we can do is take one day at the time. There is always someone here to listen, love to you Yvonne xxxxxx

[Bpgail in reply to easterncedar]

Thank you,,for replying? I was diagnosed in January last year and I keep wondering why. My right hand is messed up and I am to have an operation at the end of May, so I am totally dependent on my husband for everything.

I am fully protected by my family but I have to,love in France because the. Health system is so good , I have two carers to get me up in the mornings ,I in the afternoon for. A bout twôhours àdvthen twôhours

Later i have two others who put me bed

[Hidden]

Bonjour,

I live in S.W. France and cared for my wife for several years until her death on 30th October 2014. I am so sorry to read that you have this wretched neurological condition that still seems to baffle the experts. Our experience of the French health system was on the whole excellent. I hope you have been granted the 100 percent expenses reimbursement. Our only reservation is one that seems to be shared by most contributors to this site - the attitude and expertise of neurologists - not all but I found that I had to fight for Roisin, against ignorance and an all too apparent attitude of "there is nothing we can do." Very frustrating for them, too!

My wife refused to believe she had PSP when the first symptoms appeared, such as falling over, and her GP here was very good at obtaining no less than three large hospital diagnoses, two in Toulouse and one in Paris over a period of a year. PSP was confrmed each time. But one also reads on this site of mis-diagnoses so, if you have not had a second opinion, I recommend that you seek one.

I am not a PSP sufferer but I have learned a great deal about what it is like to have it, from caring for someone who was, and you and your husband will find a wealth of good advice on this site, as I did. Which is your home Department in France?

Best wishes to you both.

Christopher.

[shasha]

HELLO I TOO LIVED IN FRANCE AND SUFFER WITH PSP WHERE ARE YOU LIVING ? BY THE WAY THIS SITE IS BRILLIANT - I LIVE NEAR LIMOGES ....

[easterncedar in reply to shasha]

hi, Shasha! How are you doing? Is spring beautiful in Limoges? we went there when I was a kid and my mother bought a dinner service for twelve. she's down to 5 plates now.

[shasha in reply to easterncedar]

YES SPRING IS INDEED VERY BEAUTIFUL AND WE HAVE SOME MARVELOUS AZALEAS ---- IF I CAN EVER GET THEM ONTO MY COMPUTER I WILL POST THEM ON HERE THEY ARE THE MOST FANTASTIC PINK And NEXT DOOR THERE ARE SOME MAUVE RHODODENDRONS - THE BUSH WAS QUITE SMALL WHEN WE CAME HER 6 YEARS AGO NOW IT IS VERY LARGE INDEED

[Bpgail in reply to shasha]

Dear Sasha,

I replied yesterday but called you swampy for some reasoning apologize . The Bushey on yoir garden sourd wonderful

Regards bpgail

[peterjones in reply to easterncedar]

eastern cedear and mr c that's ok mate she will not have to cook for so many people now if she is down from a setting of twelve ]]]]]]]]]]]] I have written to you twice but lost both of them will try again today or tomoprrow peytert jones queensland Australia psp suffererer

[easterncedar in reply to peterjones]

Ha! That's right, Mr. Jones. Although one time I brought lobsters from Maine so she could have a little family gathering and she asked her sister to come and to bring her own plate. Which she did, of course. I cooked the lobsters, and they were very good!

[Bpgail in reply to peterjones]

Dear peterjohns

I have replied to you once it probably hot lost as many pf the replies tend to do

I would like to n

Be one of your correspondences so let me know I liive in western France

Kind regards

BPGail

[peterjones in reply to Bpgail]

bp gail you surely can be in my correspondence mate just as long as I do not have to answer you in French mate although maybe you will not understand my English at times because I use no full stops or commas or punctuation marks so if you can still understand me after all that please go ahead it will be nice to hear from you in france

I already write to a lady called sha sha who lives there ok bpgail see yer peter jones queenslandAustralia psp sufferer PS have you or your husband or any family got psp mate just so I know what not to say take care best wishes to you

[shasha in reply to peterjones]

hi PETER ,

I TOO am in correspondence with bp who seems very nice - how are you doing ?

love from shasha

[Bpgail in reply to shasha]

Do you drive s car? I have not driven one for 2 years. Inam'too,sacred

[peterjones in reply to shasha]

hi yer sha sha well that's nice being in correspodence with the new lady matey obviously she wants to talk to someone

it can be very lonely having psp and feeling isolated in yourself peter jones queensland Australia I will drop her a line when I get myself sorted out from a couple more falls last night hows mer old mate fred getting along still chopping wood fred or have you given that away see yer mate take care

ghgt mate

[Georgepa]

Hi Bpgail- you will find loads of friends here who will respond to any post you make - carers and folk with PSP . They listen when you are down - free with helpful advice and find laughter where you might not have expected to find it . I think I have made more friends here than I have in the rest of my life.

Georgepa

[Bpgail]

J am also 65 and live at

T Beaulieu sur Loire which is near to angers at do i wouldlike to correspond

[shasha in reply to Bpgail]

I AM 68 AN WOULD BE HAPPY TO CORRESPOND

[jillannf6]

h i bp gail

i HAVE PSP AND HAVE VISITED THE LOIRE VALLEY MANY TIMES IN THE PAST BUT NOT NOW I AM AFRAID

WE ARE HAVING HOLIDAYS IN THIS COUNTRY NOW AS PACKIGN IS POSSIBLE AND I CAN TAKE MY WHEELCHAIR WITH ME

PLZ STAY IN TOUCH AND WELCOME TO THE SITE!

LOL JILL

HUGS AND XXX TO YOU AND YOURS

[Bpgail in reply to jillannf6]

Hi,

I was diagnosed with PSP in January 1913 so I am really. Fed up with it my right hand is messed up and my knees are beginning to hurt

I am glad you used to visit the Loire valley it is a lovely area. I will correspond with you in the future

Regard bogail

[nannygoon]

Hi, I live in Scotland and will be glad to talk or write to you through this site or otherwise. I lost my sister Rose (81) to PSP on April 4th she suffered with it for4/5 years I am still grieving but hope I will get strength from the people on this site who have already been a great comfort. Margaret.

[peterjones]

hi bpgail hows it going now ok i hope and you are doing ok well mate you wanted someone to write to now I should imagine that you have plenty of people in fact probably to many well we atre in our autumn now and it gets a bit chilly about 4 in the afternoon and early mornings but the days are beautiful blue sky and sunshine mate just what the dr ordered did you see those earthquakes in Nepal all those poor people and lost lives iits terrible isn't it well matey im only a one finger typist so if I have made any mistakes just close your eyes to it with that I will say take care matey stay as fit as you can I think it helps see you peter jones queensland Australia psp sufferer