Hi all,
It's so hard to write, but I just want to let you know that my dear FIL passed away on Friday 20th December 2024. Christmas and the start of 2025 have been so hard to navigate but we have our wonderful children to carry us through this difficult time.
As some of you may know from reading my previous posts, we think my FIL had PSP for maybe 4-5 years before he was diagnosed in October 2023.
PSP didn't take him in the end, although it took everything else, his mobility, poor eyesight and finally speech. Thankfully his mind, amazingly, was so sharp. He took ill a few weeks ago, vomiting brown liquid which we thought may have been a blockage. He was taken into hospital where we were told that in fact he had kidney and liver cancer too, it was such a shock. He never returned home and spent his last days in the local hospice, of whom were absolutely amazing. Upto that point we had cared for him at home, my loyal, loving MIL of 86 years of age, 63 of those years married, nursed him until she reluctantly had to let him go as she realised that between us all, Jim needed a higher level of care that we just couldn't give.
He will be laid to rest next week, thankfully we have our faith to guide us through this uncertain time.
I just want to say that this forum has been an absolute Godsend, So informative, so supportive, so inclusive, thank you to each and everyone of you for your advice and kind words through our PSP journey.
One more thing, always, always keep knocking on those doors for help from the health professionals, they don't always know what to do, I have first hand of that along with most of you. Please NEVER GIVE UP, NO MATTER HOW HARD IT GETS.
Our PSP journey has now ended but for all of you still on this journey, I will be thinking and praying for you and your families to keep strong.🙏
What are the odds?
Jim`s story
PSP gifts!
