Yes we won !!!!! Got the phone call this morning just as I was about to launch my full frontal attack (that might not be quite the right expression but you know what I mean ) .The CCG didn't phone direct but got the nurse who did the original assessment to phone .We are getting full funding back dated to the start of September for a start and she is fighting our corner to to get it back dated for a year .I guess my rant at them yesterday had some effect after all . I doubt if the decision was made today ,I think that it has been sitting in someone's in tray for some time .
I would like to thank all my friends here who have given me so much love ,support and advice throughout this long and tortuous process - without you all I may well have given up the battle .
I am not going to stop now , I am going to continue the fight at a parliamentary level to try to get this dreadful system reformed for other people who have yet to face the horrors of CHC funding when they are already suffering considerable stress and anxiety with having to deal with PSP .
love to you all Georgpa ( exhausted but jubilant )