5.40am Steve finally lost his battle with PSP. He passed very peacefully in his own bed, with me cuddling him, his daughter by his side and my daughter and sister with us.
Thank you everyone, for your support and love over the last few days especially, I did feel it.
Words can't express how I am feeling.
Lots of love
Anne
Rest in Peace Steve,and my thoughts with you Anne So glad you have family to help now Shout Scream Cry it is all allowed. Love Pauline xxx
Hi Anne what a sad time for you all and you have shown such strength peace to you all and a happy new year ahead xxx
All my love and sympathy Anne . I am pleased for you that it was such a peaceful end and you were by his side - I am sure he would have known deep down you were there as you have always been .
Love Georgepa
Sorry for your loss. I am glad it was peaceful and loving. May he rest in peace and may you find comfort.
Heady, sending love to you and your family. You should feel so proud of yourself that you were strong right to the end. Just a few more days now and then you can take time to heal yourself. All my love and thanks for everything you've done for all of us on this forum xxx
Hugs and hugs to you on your loss, you were a wonderful carer with sound advice for others , for which I'm grateful to you for. I hope all the happier memories come to the surface in the weeks to come xxxxxxGW
Heady, I am sorry for your loss but glad Steve is out of the clutches of PSP.
You stayed by his side through it all and in the end you were a brave and strong woman.
Sending you hugs and prayers for the days to come,
Paola
Dear Anne
My most sincerest condolences to you and your family
I'm so very sorry but your darling Steve will now be at peace and free of this spiteful and hateful illnesss
You now need to take your time in grieving
My thoughts and prayers are with you
You are a dear friend that I have not met, but one that I simply adore
Much love my darling
Amanda x
Dear Anne, my sincere condolences to you and your family on the loss of your dearest husband. Steve is at peace now and free from the evils of PSP. I'm sure having you cuddling him was a great comfort to him and having family there too.
You have been a tower of strength and fountain of knowledge to all us on this forum and I thank you from the bottom of my heart. You fought a hard fight for Steve and rightly so. You are a very special person whom I consider as a special friend. Now it's time for you grieve in your own way and in your own time, something you always told others. Take care, sending you all my love. Nanny857 / Marion xx
So very very sorry for your loss...no words really - just sending love X
Dearest Heady, It's been three years, I think, since you began posting here. I am very sorry for your loss, but it's somehow consoling to me to know that the end can come so peacefully after all the years of struggle. Sending hugs and warm wishes for your comfort and rest. Take care of yourself now. Love, Ec
Oh Heady, I understand how you can't express how you are feeling.
My thoughts and prayers are with you at this distressing time.
Lots of love
XxxX
Anne I'm so sorry, I can imagine how you feel right now and I'm feeling it with you, I shed a tear for you when I read this post, so so sad.
Please try to do what you've always advised others on here to do, grieve in your own way and your own time, please take care of yourself and never forget that you did all you could possibly do to support Steve and I'm certain he knew that and was thankful for your love and care.
You are remarkable woman Anne and a true and loyal friend to us all, please keep in touch with us and let us know how you are doing.
Thinking of you always and sending you and your family my love....Pat xx
Oh Heady I don't know whether to shout out joy or get on my knees and cry tears of sorrow.....It's been such a long haul darling and I wish you only peace and comfort....you've done absolutely everything you could....and the inevitable has finally come to you and Steve....
AVB
of joy:
For his anger (and pain) endures but a moment; in his (her) favour is life: weeping may endure for a night , but joy cometh in the morning... Psalm 30:5
Behold God is my salvation I will trust and not be afraid: for the Lord is my strength and my song; he is my salvation...Therefore with joy shall I draw water out of the wells of salvation.
Isaiah 12:2,3
For ye shall go out with joy, and be led forth with peace: the mountains and the hills shall break forth before you into singing, and all the trees of the field shall clap their hands. Isaiah55:12
of sadness:
Surely He hath borne our griefs, and carried our sorrows. Isaiah 53:4
The Lord is close to the brokenhearted and saves those who are crushed in spirit. Psalm34:18
Blessed are those who mourn, for they will be comforted . Matthew 5:4
Dear Anne, I am so sorry but glad you were there right to the end. Be sure to know even in your saddest, darkest times that you were an amazing carer and a wonderful wife. Now remember Steve from the happy times before PSP.
With love
Vicki x
You have been an amazing carer and wife right to the end and Steve was so lucky to have you . For many of us the battle becomes too hard and we have to let others take over. You should be proud of yourself and I sincerely hope you manage to enjoy your future without your beloved husband. Lots of love and hugs xxxx
Oh Anne I've been thinking of you both so much the last few days, my heart goes out to you, from his point of view he'd had Christmas with family around him and you by his side at the end
Lots of Love
Debbie xxxxx
Dear Heady, I too have been thinking of you all at this sad time, Your Steve had you and his family around him , he was surrounded with love and that is the best thing. My heart goes out to you, I send my love and hope you will be ok, God bless xxx
Dear Heady I am also sending you a very big bear hug and letting you know that my thoughts are with you at this difficult time. You have been truly amazing and inspirational in your love and support for both Steve and the rest of us still battling with this dreadful disease. Sending love and sympathies for you at this difficult time,
Mxx
Dear Anne, I'm sorry you have lost Steve but glad that it was a peaceful end with you both close together.
I hope you can follow the advice you have so often given others and feel free to grieve in your own way.
You have fought so hard for him I know. I remember when you last went to S. A. and were touched when a stranger said how much you did for Steve. No-one could have done more !
Lots of love and a big hug, Jean xx
So sorry but relieved for both Steve and yourself. I haven't been on the site much over Christmas as on granny duty the last 5 days I feel terrible I didn't read your post until today. It was a shock to hear of Steve's passing ,but he is now at peace and free from the horrible suffering that this disease causes. Please take good care of yourself, take time to grieve and don't forget to keep in touch.
Love and hug
Kate xxxx
Oh Heady I have been thinking about you so much, so sorry Steve lost his battle with PSP, oh Heady I can't express how sorry I am, but at least he is away from this evil illness, sitting here so sad for you, at least you were all with him, and he had Christmas with people he loved. Sending you a big hug, Yvonne xxxxxx
Heady
I'm so pleased for you both that the ending to this terrible illness was so peaceful & that you were by his side as you have been all the way & showing him how loved he is ❤
Thinking of you & sending you so much love xxx
Big hugs to you Anne. Steve has started on his last journey and the road is smooth for him. I hope and pray that this last road you have to travel is a smooth one as well.
Grieve as you must but remember Steve is now suffering no more (please take some comfort in that).
Jane xx
Hello Anne. My thoughts are with you. I'm glad Steve was peaceful and not in pain. I wish you all the very best for the future. It will take time to get back to a 'normal' life but you will get there. Good luck, love Maddy xx
hi heady I cant' put into words what I feel so I will just say hold your Head up high mater you have done a bloody good as a wife and carer and nobody can take that away from you I am very sorry heady I feel though I have lost a friend even though we never corresponded take care MATEY.
peter jones Q.L.D. AUSTRALIA -PSP PERSON
Dear Anne I am so sad for you and your family. I am glad for Steve though. He is free from PSP and has had a lovely death surrounded by his loved ones, especially his lovely wife. Nobody could have done more for him Anne. Yes there may have been times you wanted to scream and probably did at times but haven't we all been driven to that point?
My heart goes out to you as you have lost your Steve who has been suffering a long time. So have you Anne. Sometimes people can't or won't understand that. The carers and people who love the person with PSP go through hell too. Thankfully you have support there.
You have been so kind to everyone on this site despite your own problems. Thank you so much for being there and I hope you don't leave us. When things calm down we will still be here. Much love to you always. God Bless you and family. Steve is at peace now.
Marie x
Sending love and comfort to you and your family ❤
My condolences to you and the family.... It is very sad but Steve is now in a better place and PSP is forever gone for him....
Dearest Anne - what a struggle it has been, uphill and downhill, and how we have all benefited from everything you learned, how we've laughed and cried together and had a good old moan. You've been a real champion and Steve was lucky to have you fight his battles. Sending you all my love, to you and your family.
Lieve x
May memories of Steve and the love of family surround you and give you strength in the days ahead.
Thinking of you
Dee
Hello anne. I am so sorry for your loss. You both fought long and hard against this horror but your husband steve has now found peace at last. Please god you will find some yourself along with the strength to go on with a different kind of life now. My thoughts and prayers are with you. Marie
There couldn't be a better way to go than peacefully in his family.
It's touched me as I feel I know you through your many inspiring posts and I have been thinking of you very often these last days.
Stay with us Anne, we've still a lot of this road to travel.
Lots of love
Rosemary.
Dear Anne, I am so sorry to learn that you have lost Steve but he passed peacefully and you were with him as always. I hope you will find comfort in the happy memories of times before PSP.
Peace be with you and your family.
Sorry to hear your sad news Anne.Steve is at peace now xxxx
So sorry about your news Heady. I hope you can take comfort in the fact that Steve died at home where you all wished this to happen. Small mercy but will give you comfort hopefully in the days to come. Peace to you all, Pauline xx
Dear Anne. My heartfelt condolences on the loss of your Steve. Words fail to express the sadness I felt on seeing your post. Take care. Xx
Dear Anne,
So very sorry. You could not have done more, Steve had a remarkable and loving advocate. No words will ease your loss but the love of family and friends will help you through this miserable time.
My very kindest regards,
Jerry.
Hi Anne
Peace for you all at last, fantastic that he remained in your arms, tears again for us all
Julie xxxxxxxxx
The battle is over for Steve now and you must take as much time as you need to recover from fighting this awful disease so hard for so long. You absolutely did your best for Steve and along the way you gave us all tremendous support and quite a few laughs.
Our thoughts are with you and your family at this difficult time.
Hugs. xxx
Heady, so sorry to hear about Steve, sending my deepest condolences
Oh Anne! I'm so sorry to hear about the passing of your darling Steve. My thoughts and prayers are with you and your family.
Love,
Becky ( Gracie girl)
Anne,
I am so sorry for you loss. I'm glad he had a peaceful passing and all of you were able to be there. You have been such a blessing to me during this PSP journey with my husband. My prayer for you is that you find peace in knowing that Steve is free from this horrible disease, and safe in our Savior's arms. Know that we'll be with you in spirit during these next few days. God's Peace
LynnO
Rest in peace, Steve. You were a fighter and you definitely had one of the best caregivers watching over you throughout this battle.
God bless you Anne.
Ketchupman
Heady. I'm so sorry to hear this. You did a great job caring for him and making him comfortable. He fought a good fight. Just know that he is no longer going through all this. He'll always be in your heart. I'm sure you have great memories to hold onto. Take time to grieve then do something special for yourself so that you can relax and unwind and figure out how to begin the next chapter of your life. Love, hugs and prayers to you and your family.
My prayers are with you and with Steve. He has found peace. May God hold you in the palm of his hand during this time. Christine
So very sorry Heady. Rest in peace Steve xxx
Oh Heady, I'm so sorry but so happy you were by his side.
My biggest worry is that I won't be.
I'm praying for you today and will again at church tomorrow.
You express your thank you for all of our support but it is you, dear one, that has kept us all going. You have been my inspiration, especially now that the dark days are coming so fast, so fast.
Please let us know how you are doing each and every day. It will help I guarantee it.
Steve is with the angels now and at peace. Bless you.
Hugs and XXX
Cuttercat
Heady I haven't been in the site for a while, I am so sorry to hear your sad news, sending you and your family my love xxx RIP Steve
So sorry to hear your news. At least you were with him and he was surrounded by those who loved him. R.I.P Steve.
Thinking of you. Love and hugs
Pj xx
My deepest condolences. Steve is at peace. You were a wonderful wife and caregiver to him. It is time now to take care of you. I pray you will get all the support you need . It will be a great adjustment when your whole life was lived around his need. You have been such a help and inspiration to so many of us. Thank you and keep in touch. There is a great need out there if you ever are at a loss for a cause your advice is very welcome.
Well done you. Now breathe.
I have been thinking about you all day but wasn't on line till now. I grieve for you and my tears are flowing. Rest in peace Steve. My heart is breaking for you but it is over Anne. Love you Anne. Send my love to your family as well.
Audrey xoxo
Dear Heady, everyone has reiterated my 'words' to you at this very sad time. Just be gentle and very kind to yourself. Was thinking of you & Steve so much since you posted your request for 'prayers' - he is at peace now and you will find rest, calmness now despite your emotions. Love Jingles x
With wings he now can fly and soar above the clouds. Anne I'm so sorry for your lose of your dear husband, your memories will comfort you. I too am glad you have your family to help through this time. Remember to take care of yourself, and rest, for we know that this has been hard for you both physically and emotionally. Prayers for you and your family.
Valerie
I feel so sorry for you!! Love, Mary B.
Nobody could have done more, Anne. You should be proud of how you managed such a terrible situation for Steve and for your family. I hope you can find solace in knowing that you did your very best. Wishing you every strength during the weeks and months to come.
Amanda.
I know it is hard to let go- no matter how difficult life was for you both with PSP it was your life together... may steve rest in peace
Anne (Heady)
I haven't been on this site much since my Les passed in August. The few times I have viewed this site, we have lost another friend to PSP. It just saddens me. Today I am reading your post and I am so sorry for your loss. Steve fought a good battle and you fought it with him every step of the way. I truly believe they lived longer because of support from amazing women/men like us who love them so much and care for them the way we did. It is TRUE LOVE! I am so happy that you were by his side at the time of his passing. That is just so beautiful and what a blessing. I read about his service and what a beautiful tribute to Steve. I also read all you advise for us caregivers and you are right on. It is so easy to get lost in PSP--it takes over everyone's life. It's important to try and take care of ourselves too.
A huge hug my PSP friend. May peace be with you.
XOXO
Nikkie
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