Hi there I haven't written before here as I've found it too difficult but my beautiful and kind amazing mum was diagnosed in March with PSP . I have felt nothing but sadness since ... Love my mum so so much !
She is struggling but never moans .. Your posts are so much comfort thank you to you all and sending you ALL loving vibes xxx
Loving vibes received, thank you. Welcome to the site. It's a brilliant site but how I wish it didn't have to exist, however, I would never have 'met' all the lovely folk who contribute if it didn't. Now there is another one, you. I'm so sorry about your mum but she is truly blessed to have someone like you to love her. Please keep in touch.
Sending you a welcome hug.
Best wishes,
Nanna B
X
Hello
Welcome.
Thank you for the loving vibes. That's really nice.
Sending some back.
I am sorry you and your Mum are having to cope with PSP.
Waiving warmly
Kevin
Welcome Mary to this wonderful site where you will receive great advice and rant and scream as much as you like, we all do! I'm very sorry to hear about your dear mum, please tell us more about her, are you in the uk? What help if any are you receiving because there is a lot of help you can get! Sending you big hugs x
Welcome, and I am sorry for your mother's diagnosis. It's very hard, but don't be too sad. PSP is bad, but it isn't the worst thing. We get to be with our loved ones. At least with PSP, for most of us - not all, sadly - we have opportunities to share tenderness and love. That is not a small thing. And this community is wonderful. Hang on. Love, Easterncedar
Welcome to this site.
It is really important to me to know there is somewhere to ask for help , offload or share things. Couldn't do without it.
Hope to hear more,
love, Jean x
Hi Jude,
Welcome to the best site on the Web, without it, I dread to think the state I would be in. Or where my husband would be.
We all share the Good, the Bad and the Ugly. It's a wonderful place to let off steam, share a nagging worry or ask for some practical advice. Someone some where, will be going through exactly the same as you, or able to offer some advice where to get help and support. Let us know where you are in the world, then the right people will be able to give the relevant help.
Most of all, you have just found yourself a whole new family, that you didn't know existed. People who will listen, pick you up, dust you down and set you off in the right direction. We all care and support each other in this dreadful journey that only PSP knows the way!
Tell us more about your Mum and yourself, the help and support you have in place. We can't help you cure your Mum, but we can help in making life has difficult as possible for PSP. We all hate it with a vengeance and if there a chance for us to give it a bloody nose, we are all there with our boxing gloves on.
Sending you big hug and lots of love
Heady
Hi and welcome to the site although I'm sorry you have the need to join us. Posting on here has been the best help to me throughout this awful journey we're all on, such lovely people who understand everything you are going through and are always there to give advice and even make you smile sometimes!
I agree with everything others have said, especially Heady, please keep posting we'll help if we can, I'm thinking of your dear Mum, keep caring for her it's so important and thanks for the loving vibes!
Sending you, your Mum and all your family my love and thoughts....Pat xx
Hello and welcome, this is the best place to be, always help and advice on hand, truly wonderful supportive folk...😊 xx
Hi welcome from me as well , what more can be said, these lovely people have said above, I think without these lovely people I would of given up a long time ago, we are like a big family, everyone trying to help you when you are feeling down, and just feel Like screaming, they calm you down and you feel able to Carry on, you sound like a very loving daughter, your mum is vey lucky to have you. Yvonne xxxxx
Welcome,we are all in the same boat so everyone knows and understands all the awful problems that unfortunately descend on us.hope you are looking after yourself too xx
Sending much love to both you and your mum. This site has given me so much information and comfort since my dad was diagnosed. Everyone on this site has so much love to give and has helped me no end. Welcome xx
Welcome... hope you continue to post. You'll find that you're not alone on the PSP journey.
Yes , welcome to the "family " you will find a wealth of experience sympathy and understanding here.Not only will you get a great deal of support but you will be able to share your experiences and help others who are on this difficult journey .
Thank goodness you are all here!
My mum is also free at last. Thank you for your replies.
Fly high Mum - CBD 12 days no swallow
