F left us early this morning. I am glad I was able to care for him at home and he was here till the end. It's been a hard week with many moments of despair but our new chapter begins. Our son will ride the London 100 again in August for PSPA along with many others. I will continue to lobby for more respite beds and will check in here from time to time.
I send my thanks and deep respect to you all.
My sincere sympathy, Hellebore. Being able to be at home at the end is a great gift. I hope you are comforted in knowing all you did for him. Love, Sarah
You were amazing keeping F at home until the end, I hope and pray I will be able to do the same. May F rest in peace, PSP can't hurt him anymore. Sending you a big hug Yvonne xxxxxx
Hug received warmly. It does make a difference. Thank you.
Sarah, thank you. I am only just realising that out of 30 years of marriage so much was spent caring. I tell friends and family to grab life with both hands and don't delay doing those things you want to do together. I was privileged to have had a partner who was so wonderful a human being.
Condolences. What a warrior you are !! Well done for succeeding in caring for F in his home. Its been a long battle and I hope you can feel some satisfaction from that.
We are reaching the long stretch now and I don't know if I can face the battle. You give me strength.
Take comfort from the love and caring you have shared during your marriage. Love and a hug from Jean xx
Jean how are things? Is it a case of doing downhill at speed or still bit by bit? Hope you are alright? You are an amazing lady. God bless you both.
Marie x
Bit by bit - but diarrhea is one of his symptoms and I find it very difficult. He is getting weaker at walking and falls to one side. I am worried about the next stage as I will then not be able to manage him on my own.
Still trying to hold back the tsunami !!!
If I think of how he was I can;t hold back my personal tsunami !
You know how I feel.
love, Jean x
Jean,having just lost my dear Don a week ago(it seems longer than that,but at the same time seems unreal) I know how you are feeling.I understand your personal tsunami! During his last days in the rehab facility I would sit feeding him with tears running down.Fortunately he could not see well enough to see them.I wish he could have come home as he was longing to.
Sending my love,Janet
The tears are always there, aren't they ?
Love and a hug to you, Janet, from Jean x
All the time, all the time. Can't believe how many tears I've shed and how many I can seem to produce. It never ends and something always sets me off.......alas.
Love,
Cuttercat
How are you, CC, and how is your Charles?
Jean I know what you mean and the awful thing is it can happen so fast. I hope you don't beat yourself up if he has to go into a Nursing Home. If it's close to you you can visit him each day?
It is difficult and there is no point pretending it isn't. However Jean you have been and are amazing! None of us can do more than our best so don't forget that?
Lots of love to you and Chris. Enjoy what time you still have.
Marie x
We'll be thinking of you and your family as you go through this difficult time 
I am so sorry. May F rest in peace, finally free from this evil disease. Now it's time to turn your wonderful caring skills onto yourself. Take your time, grieve in your own way. Nothing has to be done today or even tomorrow.
We are still here for you.
Lots of love
Anne
Hellebore so sorry that your loved one has gone. However he is now free of the awful PSP? It is so cruel, and the help that people get has to be fought for. It's beyond cruel in fact?
Well done to your son. At least he will make people ask WHAT?
God bless you all at this very sad time. Stay with us as you have so much to offer. Now is maybe not the time as you have to come to terms with what has just happened but we are here for you. If you need support you will get it in bucketfulls here, and maybe you can help others whose lives are about to come crashing down?
Love and hugs to you.
Marie x
Sarah
We are so sorry for you both.
It's wonderful that your partner had their last breath in your home.
Liz and I aim for that. You give us hope.
We both wish you the strength you need in this very hard time.
Warmly
Liz and Kevin
My sincere condolences to you and your family. I only hope that I get your strength and caring skills so I can keep W at home to the end. Good luck and a big thank you to your son for doing the London 100. Lots of love Nanny857xx
My thoughts are with you and your family Hellebore. Your beloved F is now free of CBD.
I hope time will give you peace, joy, gentle memories of your life together, and time to heal. Time is on your side, no urgency or need to do unless you desire it.
Big hugs to you. I know how it is!
Jen xxx
You have my deepest condolences. F is finally at rest.
Ron
I'm so sorry for your loss. Your husband is finally free from PSP. You've done a remarkable job by keeping him at home till the end, it is truly commendable. The coming days will be difficult, but try and look back at the good memories without PSP. Take care
I'm so very sorry and send my most sincerest condolences to you and your family. X
I am so sorry for your loss.
Sorry to hear your sad news Hellebore but I'm sure you know you have done everything possible to have made F as loved and comfortable until he passed away. My thoughts are with you and your family as you grieve for the man you loved. xxx
Sending love
Many condolences I am happy that you were able to keep F at home until the end. Now is the time to grieve and rest, but the new road will start soon remember the good times with F they will give you strength to move on in little steps.
Best wishes and love Tim
I have just joined PSPA and saw your sad news today. My sympathies on your loss. God be with you
Hugs to you and your family, may your hearts heal in time.
Take care of yourself
Dee in BC
I hope I can keep Charles at home like you did. My sympathies because this disease is the worst on the planet and there are many bad ones.
Tell your son we are grateful for his PSPA support. You should be proud.
Blessings,
Cuttercat
So sorry to read your news. My mother is following in your steps, trying to care for my father at home as long as she possibly can, so I know how demanding it is, and have huge admiration for you.
What a group of fabulous people. You all hAve your own problems and despair and fatigue but as always find time for kind words for others. Respect.
Thank you all. It really does make a difference. To all those facing what I have just done, you can do it. Not easy but the energy and patience appears from nowhere. Surround yourselves with a toolbox of helpful people, information and gadgets. Be prepared. Make difficult decision at calm times not when there is a crisis. Have courage to make hard decisions and stick to them.
With thanks and hugs of strength back to you all.
Sending many Blessing to you, so sorry for your loss, take care of yourself. Nettie
Please do continue to fight so that this hellish disease becomes well known. Good luck and God bless you.X
The struggle is over, the fight was difficult the warrior strong.
Sad News regarding a Great Friend
Sad News 
