Well after a very strange few days of various people telling me Keith doesn't qualify for fast track CHC beapcause it was only for "end of life patients" we have actually got it! I decided to get in touch with Keith's doctor who then contacted the district nurse who works alongside him and they both sorted it for us in two days! Even Keith's specialist OT who has arranged most of the assessments thought he wouldn't qualify! It's taught me a lesson, unless you keep pushing for the right help it won't be handed to you on a plate, my advice is don't ever give up, you are fighting for care for your loved one after all and that's all that matters! Extra care has already been put in place, I know it involves a lot more calls but at the end of the day everyone is entitled to the help they deserve!I'm slowly turning into a proper pushy cow, but I don't bother any more, Keith is all that matters to me!
On a down side, he has deteriorated a lot this past week, I think his mobility has come to an end, he's fallen three times in four days, once taking me with him resulting in blood everywhere! His bed is now coming downstairs, he can no longer use the shower and a hoist and commode are on their way. I hope I can find the strength to deal with the changes which have happened so quickly, I think I'm clinging on to a miracle which isn't going to happen is it?
Sending my love to you all....