Just needed to have a "conversation" with those of you who know what caring for someone with PSP can feel like. Yesterday was a stressful day. I had to take my hubby with me to my pre-admission check at the hospital where I am to have day surgery next week. Unfortunately there was nobody available to stay with him while I went. We were there ages. I was a bit thrown when I knew details of what next week will mean for me, and basically (without going into detail) it is likely to "wipe me out" for a couple of days at least. My daughter will be coming from Wales to stay for a couple of days so Tony will be cared for.
However, we arrived home from the hospital and Tony was desperate for a wee. He uses a urinal bottle which means he no longer has to go upstairs to the bathroom. No problem I hear you "say". Unfortunately in his haste he dropped an almost full bottle on the hall carpet!! You can imagine how I felt. He was upset and so sorry, but I was tired and hungry and I just lost it completely! I ranted and raved at him and then felt very, very guilty at my reaction. All this happened before I had even take off my coat. I apologised over and over again to him once I had calmed down a bit, but I know this sort of thing doesn't help him and I know he certainly didn't mean it to happen.
I'm sure I am not the only person who gets so tired some days you could cry (which I often do). In a previous post some weeks ago I ranted on here and wrote that I HATE, HATE HATE this dreadful illness. It wrecks lives and causes such unhappiness and sorrow. Why oh Why?................
Sorry folks, but I feel a little better now for having got that off my chest.
God Bless everyone and thank you for "listening".