Today I had lunch with Heady . V was at the hospice today and S is in respite and Heady was visiting her daughter in South Devon . Since the motorway is not very far from where I live , Heady diverted her route and we met at a riverside pub overlooking the River Exe. It was strange to meet someone with whom one has been in contact with through this site and to put a face to the name .I have to admit I am a bit of a solitary person and on my day off when V is at the hospice I tend to either go off for a walk or up to my allotment . Today was very different . We had "grown up " conversation ; talked , laughed , compared experiences and it was a huge relief to be able to talk to someone who understood exactly how things are without having to explain yourself .I felt more relaxed than I have done for some time - it was a real tonic . Heady was a breath of fresh air for me - so thank you Heady for making the effort - you gave me a much needed boost .
And do you know that as we were looking out across the Exe as it tumbled and bubbled its way over the weir under the ancient Bickleigh cartbridge we saw the first swallows of the the year - now there's a thing .
Written by
Georgepa
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How lovely for you both, I too am planning to meet with someone on this site who has moved quite close to us, I hope it goes as well as your meeting has, love to you both!
I have said this before, but, I wish that we could have a PSP carers get-together. It is so lovely that you guys were able to meet. It makes me want to reach out more.
If you are in the UK, the PSPA association do have "local" support groups where you can meet with others in the same situation. We have to travel for half an hour to get to ours and meet at a garden centre. At one meeting someone asked me if I was Nanna B. I asked her how she knew and she had heard me talking about playing the ukulele and wondered how many women who played the Uke also had a husband with PSP. I first "met" her here. Another couple from this site also go to the meetings. You could ask the PSPA if there is one within easy reach. If you have joined the PSPA, their magazine PSP Matters has an insert giving details of where, when with times of meetings. I hope there is one in your area.
I'm so pleased you were able to meet with Heady. I've met with 2 couples from this site and when they post here, it's good to be able to "hear" what they are saying. What a lovely place to meet, overlooking the Exe.
Hi Georgepa and Heady It must have been as good as any therapy to meet somebody who truly understands, and you feel you already 'know' through this site! Heady have a nice time with your daughter
What a lovely experience. I've also met up with someone I met here. Its so good to not have to explain anything. Hope you had a good laugh. Of course it could be risky like a " blind date "
George and heady so glad you meet up, sounds wonderful to speak to someone in the same place as us all. We should all make arrangements to get together, how wonderful would that be? 😀😀😀😀
Hi, yes George and I had a lovely time. It was very strange to meet someone that you "knew" already! If you think about it, we all know each other's inner self, all the things we keep from family and friends, so there is nowhere to hide, therefore you just be yourself and relax.
I have never been a person that makes the first move, put myself out there. PSP has changed me. Fighting for S has proved that I am more than capable to do the things, that I didn't think possible. I always thought I was a bit of a whimp! Thanks to " good olde" PSP it has shown me that I am not!!! (The saying, "every cloud has a silver lining" is true!)
I am so glad I did contact George, as he has said, to have a grown up conversation, with someone who knows the inner Heady, is something I have never done and to be able to totally relate what I am going through, well words can't express!
As NannaB replied about the PSP meetings, they can put you in touch with others. You might not appreciate the meetings themselves, but meeting people in the same place as you is worth it!
And George, that swallow was special, it has put a very tiny light on, in this extremely dark tunnel.
Moral everyone? Get out there, use the positive part of PSP. Talk and LAUGH about the disasters at home, with someone who understands. It will help make those lonely, dark moments seem a tiny bit better!!!
Heady and George, I am so pleased you managed to meet up and have a good laugh together. What a tonic ( no gin of course as you must both have been driving) Unfortunately Ben won't attend the meetings at present, I think that fear of seeing what is his future comes into it. I wish you both well and glad you managed to enjoy yourselves despite this wretched disease. K xx
That is just wonderful - I would love to meet you both, and many more. No PSP Association here or groups. We have a Parkinson's Association and that's about it. I've ordered leaflets and the PSPSA magazine, for my dad to make him feel less isolated, and to educate his primary carers, family & friends. And there is this forum of course!
Looking forward to hearing more 'close encounter' stories
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