Hi, I know I keep stressing how helpful the local hospice can be to us. I want to tell you all about today!
I have had the OT, from St Peter's come to see us today. A lovely woman, knew her stuff. Treated S with total respect, made us both feel as if she really cared, that S wasn't a burden on society, just someone who needs a bit of help to make life easier for him.
You will never guess this bit, I was shocked, she actually watched him, getting in and out of bed, getting into the bathroom and to the shower! Took him out to the car! Then was able to offer some advise and put several things on order for us, that will help. Because S felt part of this, I think he will accept the tools given! This is sooooo different from the ones from Social services, who only sit and talk to me for as little time as they can get away with!!! Until this morning, I would have said, the OT's were one of the better services that I have come across!!!
Also, the hospice have been great dealing with some of the other people I come up against. I don't know what sort of gun powder they use, but certainly, fireworks have been placed in appropriate places and action follows very quickly. Yesterday, at a carers course I am on, at the hospice, I was moaning about how useless I thoughts pads were, because S's convene is still in the post! Within a couple of hours, the local continence nurse was on the phone, seeing how we were, was there anything she could do!!!! Coincidence, or what?????
So anybody out there, who has NOT yet been in contact with your local hospice. Phone your doctor first thing in the morning, get them to refer your loved one NOW!!!!
Lots of love