Mum has psp recently been diagnosed but it has progressed to end stage because she also has severe arthritis it has been masked. She has a peg tube for feeding no longer able to swallow she can walk a few steps holding onto her. I work full time and all my spare time is spent there supporting mum and dad. She needs turning during the night. It's constant which isn't mums fault and I feel so sad for her it kills me seeing her. The problem is they are entitled to help but they both refuse it they have become so dependant on me and in a selfish way expect me to do it, I don't feel like a daughter anymore I feel like a carer and I don't know how to explain this to them without hurting them. I go to bed most nights crying.
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