Sorry I haven't posted or replied to anyone for a long time but my internet has been down for a month and it has taken this long to sort it! Needless to say I now have a supersonic, very fast connection so I will be able to keep in touch with you all again!
Hope you are all ok and coping with everything, I am just about, still have good and bad days though but that's something I am slowly getting used to. Keith isn't too bad at the moment he is going through a fairly settled stage, he's not had any bad falls, but that is mainly due to the fact that I follow him everywhere!
I have been catching up on all your recent posts and when I read all the ones about pee and poo problems they certainly rang true to our situation, I seem to spend most of my life shuttling backwards and forwards to the loo and the rest on my hands and knees with a scrubbing brush, cleaning solution and carpet cleaner, oh the joys of this awful PSP and how degrading for the poor sufferer, how I wish I could do something about it!
We do get a lot of help now though but only because I have pushed for it. Keith still doesn't want to go to the hospice again and if he's unhappy about it I've decided not to push him. Instead we get a sitter for three hours every week who pushes him out in his wheelchair if the weather is fit, the caring team (who look after him in the morning and get him ready for bed at night) have given us some free sitting hours and are coming on Friday afternoon for five hours so I can take my mum out shopping for the afternoon. Keith's brother has also offered to come up once a week for a few hours and take him out so I am getting a little normality back in my life at last and feel slightly recharged for the challenges ahead.
We have also managed a holiday!
Decided that now was the best time to do it while Keith is still able, we have been to the lovely island of Menorca and stayed in a private villa with its own swimming pool, only managed to get him in the pool once though, very scary as it had three steps down to it and no rails! Our son came with us, I wouldn't have attempted it on my own, he stood one side and I the other and we walked him in!
My son promised me I would be able to have a complete rest and guess what, I only had one cup of tea in bed which I was really looking forward to, how sad that you can get so excited about a flipping cup of tea!
We also had all the help available at both airports and I was very impressed!
Keith only had one fall, off the loo of course, but only sustained a small cut to his cheek (on his face!) which reminds me I have just had to stop writing and go on yet another pee and poo visit! Happy days!
I have missed chatting to you all very much and am so glad I have got my magic machine working again!
Much love to you all....Pat....xx