We had an appointment today with V's neurologist except we didn't see him we saw his co -consultant along with a trainee who was there because she had never come across PSP - poor girl , what a lot to learn .They were both very nice and apart from the fact that V's neurologist had forgotten to put his notes in the file and believe you me it is some fat file - I can always tell where we are in the queue by where V's file has progressed to in the pile - it really all went well I suppose .Except what was the point of any of it ? They freely admitted there was nothing they could do to help the cognitive problems or the falls or the OCD. They had no answers to any thing- I didn't think they would .But they were very smiley and asked if I had enough help as they didn't want me to have burn out and I was very smiley and said we were doing ok and all the time I was thinking I would love carer help 24/7 plus an 18stone body builder who could lift V effortlessly up from all the falls especially when she gets into an awkward spot and also to deposit her and her wheelchair into and out of the car and whilst we were on it how about a chef - one from Master chef would do and maybe an entertainer thrown in since poor V can't read and can't concentrate on audio books long enough to get to grips with the characters or plots - but no we are doing OK .The highlight of the afternoon was when we were sitting in the waiting area there was a very large lady sitting with her back to us and she was wearing what I can only describe as a very tight flesh coloured top. I happened to mention to V whether in fact she was naked from the waist up and what would greet us if she turned round this produced such a shout of hilarity from my wife that all the elderly gentlemen waiting to go into audiology reached for their hearing aids convinced their hearing was on the mend .There's always something to enjoy isn't there ,you just sometimes have to seek it out .
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