I sat and typed a long message, but I think it got lost again, not sure why, but here goes again, I said in my last post that I think Heady is right about the moon, and stress, I have felt stressed for the last couple of weeks, not sure why, just this PSP symptoms are so unkind, to the person with the PSP and the carers, the laughing, and all the different symptoms, are hard to deal with. We went to the hospital last week and George joined the new trail that is being sponsored by the PSPS only taking blood from him. A bit worrying when the Prof Morris, said that PSP was not hereditary, but George's first cousin had PSP and some of his first cousins brothers and sister, he has all the symptoms of PSP. The doctor asked if he had any test, we said the MRI, brain scan, and a few others, he suggested George went into hospital for tests, we spoke about it and he wants to go. They are also going to do some genetic tests, which he said would take a couple of months.
Also he does not want to get out of bed, I try to get him up but it is hopeless I open the curtains, and windows but he still won't get up, does anyone else have this problem? Also the Prof at the hospital said George should have the Continuing health package, not sure how to go about getting it, but the nurse from Isobel hospice said you and assessed by the community nurse, I have asked the doctor for the last three months to see them, I feel like I am having to be so aggressive to get things put into place, which I was not like before, and it is taking its toll on me. Sorry to be so miserable but had to let of some steam hopefully this message will not get lost. Love to you all and Heady hope things are better with you xxxxxxx. Yvonne xxxx